Inflammatory bowel disease registries for collection of patient iron parameters in Europe

Table 2 Suggested iron deficiency anemia-related parameters to collect in an inflammatory bowel disease registry

Laboratory measurements
Hemoglobin level
Serum ferritin level
Transferrin saturation level
Soluble transferrin receptor level
Hepcidin
Mean corpuscular volume
Mean corpuscular hemoglobin
C-reactive protein level
Clinical observations
Identification of ID/IDA-related symptoms
Duration of possible ID/IDA-related symptoms
Number of, duration of, and reasons for healthcare visits
Medication usage
Patient-reported outcomes
Quality-of-life questionnaires
Fatigue questionnaires
Work productivity and activity questionnaires
Treatment decisions
Iron supplement (oral or IV)
IBD medication
Surgical procedures

IBD: Inflammatory bowel disease; IDA: Iron deficiency anemia.