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İşeri Ö, Orak OS. ''Two People in One Body": Qualitative Study on the Family Perceptions of Recipients with a Family Member as Their Donor Using a Projective Method. Issues Ment Health Nurs 2025:1-10. [PMID: 40300190 DOI: 10.1080/01612840.2025.2492692] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Indexed: 05/01/2025]
Abstract
The aim was to examine the family perceptions of recipients with a family member as their donor using a projective method. In this qualitative study, an arts-based narrative method was employed. The study was completed with 16 recipients through the drawing test, observation, and interviews. The recorded data for each participant were analysed projectively by creating a coding list related to family perception. Each participant's drawings were analysed in alignment with data obtained from other data collection tools and the categories were identified. And then categories were evaluated thematically, main themes identified. There were numerous inconsistencies between the recipients' consciously expressed statements and their unconscious projections. The significant changes in the life of another family member after organ transplantation have placed a dual responsibility on the recipient, both for their own life and for the donor's sacrifice, alongside feelings of gratitude. Another finding is the sorrow of lost time within family roles due to illness and its associated treatment processes. Organ transplant recipients tend to view themselves as different from others in society, experience guilt, and engage in self-directed negative attributions. The findings provide transplant and mental health nurses with a new perspective on assessing the psychosocial difficulties of transplant recipients and understanding family dynamics.
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Affiliation(s)
- Özge İşeri
- Faculty of Health Sciences, Department of Nursing/Surgical Nursing, Ondokuz Mayıs University, Turkey
| | - Oya Sevcan Orak
- Faculty of Health Sciences, Department of Nursing/Psychiatric Nursing, Ondokuz Mayıs University, Turkey
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Corbally M, Ffrench O, Rodger D, Ricci R, Phelan A. A Narrative Exploration of Family Members' Perspectives of Life Story Phases Following Transition of an Older Family Relative Into Long-Term Care. Int J Older People Nurs 2025; 20:e70001. [PMID: 39638954 PMCID: PMC11621040 DOI: 10.1111/opn.70001] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Grants] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 07/31/2023] [Revised: 09/06/2024] [Accepted: 11/03/2024] [Indexed: 12/07/2024]
Abstract
BACKGROUND The transition of an older person from a home environment into long-term care is frequently unplanned and complex. Little is known about how relatives make sense of supporting the transition of their relatives to long-term care. OBJECTIVE This study explored family members' narratives of the process of supporting the transition of their older relative into long-term care. METHOD Life stories of six relatives who supported transitioning their older family relatives into a nursing home were collected using open narrative questioning in accordance with the Biographical Narrative Interpretive Method. Data was analysed using a dialogic/performance analysis narrative analytic method. RESULTS Four key life story phases were identified: before transition, crisis event, transition and after transition. These phases varied in time duration and involvement of healthcare providers. The longest phase was 'before transition' where a process of slow deterioration became more apparent to the participants retrospectively. This was followed by the shortest period 'crisis event' where the older person was admitted to tertiary care. Two permeating themes: family dynamics and knowledge/understanding underpinned all life story phases. CONCLUSIONS Relatives' knowledge, family dynamics and positioning of self-informed the duration of the life story phases of participants as they navigated the transition. Understanding nuanced differences in relatives' life story phases highlights how timing of information provision can affect the emotional adjustment of relatives experiencing this challenging process. IMPLICATIONS FOR PRACTICE Both community and gerontological nurses' offer real potential to provide tailored and effective responses to relatives depending on each life phase. Sequencing of information appropriate to the life phase could potentially ease the stress associated with transitioning to nursing home care, possibly preventing a crisis event from occurring. Anticipatory conversations also offer potential to alleviate relatives' concerns through life story phases.
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Affiliation(s)
| | | | | | | | - Amanda Phelan
- Trinity College DublinThe University of DublinDublinIreland
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Cardiff S, Van Der Zijpp T, van den Nieuwenhoff H, Nieboer M. Collaborating for co-researching: A multi-stakeholder case narrative of student nurses co-researching technology-supported care. Nurse Educ Pract 2024; 80:104097. [PMID: 39191201 DOI: 10.1016/j.nepr.2024.104097] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 04/17/2024] [Revised: 07/22/2024] [Accepted: 08/12/2024] [Indexed: 08/29/2024]
Abstract
AIM Evaluate the impact of LS@H project participation on stakeholders. BACKGROUND As populations age and workforces decline, care technology in nursing is becoming increasingly commonplace. Collaboration between nurse academia, education and practice can result in practice-based research and meaningful learning for nursing students and staff. However, little is known about the factors influencing effective collaboration. Based on the knowledge that narratives can be an effective vehicle for healthcare practice change, a Dutch school of nursing and its practice partners collaborated on the Living Longer and Safe at Home! (LS@H) project. This project aimed to explore a more person-centred approach to the use of technology in nursing care. Having gathered data from multiple sources to construct case narratives on the use of technology in older persons care, students nurses were able to contribute to practice development as their narratives were fed back to local and regional teams. DESIGN To evaluate the impact of the LS@H project, we employed the same methodology used in the project: mixed data gathering methods to construct a case narrative. LS@H project students, supervisors, mentors and higher management shared their experiences and the research team constructed the case narrative. METHODS Qualitative data were gathered via individual, duo and group interviews and supplemented with a survey among students. Transcription and thematic analysis followed, with multiple rounds of critical peer review before the thematic framework was agreed, survey results integrated and the case narrative constructed. RESULTS According to stakeholder participants, the LS@H project led to an unfreezing of the status quo in both education and practice. The approach was new and guidelines with community support was needed to allay fears. The project design enabled a sense of shared ownership, across individuals and organisations for improving practice. Perspectives on the use of technology and older persons nursing were transformed. Critically dialoguing case narratives encouraged purposeful action to improve practice and fostered reflective practice among students and teams. CONCLUSIONS Collaborative practice-based research can be a valuable learning experience for student nurses, positively influencing their view of nursing practice as well as enabling them to actively contribute to practice development. Adequate preparation, supervision and practice mentorship is vital, alongside practice (leader) commitment to ensure continued student assignments with subsequent critical dialogue of the multi-stakeholder case narratives produced. REGISTRATION NUMBER At point of submission put this on title page.
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Affiliation(s)
- Shaun Cardiff
- Fontys University of Applied Sciences, School of People and Health Studies, Rachelsmolen 1, Eindhoven 5612 MA, The Netherlands.
| | - Teatske Van Der Zijpp
- Fontys University of Applied Sciences, School of People and Health Studies, Rachelsmolen 1, Eindhoven 5612 MA, The Netherlands.
| | - Hélène van den Nieuwenhoff
- Fontys University of Applied Sciences, School of People and Health Studies, Rachelsmolen 1, Eindhoven 5612 MA, The Netherlands.
| | - Marianne Nieboer
- Fontys University of Applied Sciences, School of People and Health Studies, Rachelsmolen 1, Eindhoven 5612 MA, The Netherlands.
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Orak OS, Bayrak NG, Emirza EG. "Silent screams": Family perceptions in the drawings of incest victim children. J Pediatr Nurs 2023; 73:e624-e631. [PMID: 37968196 DOI: 10.1016/j.pedn.2023.11.008] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 09/07/2023] [Revised: 11/05/2023] [Accepted: 11/05/2023] [Indexed: 11/17/2023]
Abstract
PURPOSE This study aimed to examine the family perceptions in the drawings of children exposed to incest. DESIGN AND METHODS This qualitative research involved 25 child survivors of incest, all of whom were examined and subjected to forensic interviews at a facility in northern Türkiye specializing in cases of child sexual abuse. The data were collected using the "Child and Family Descriptive Information Form", the "Abuser Descriptive Information Form", the "Family Drawing Test", and the "Semi-structured Interview Form". RESULTS The children's drawings were subjected to a projective analysis, leading to the identification of three key themes: the distress of confronting incest; unbalanced power and role allocation in the family; and dysfunctional family dynamics.". These themes were discerned by examining the connections and coherence between the categories. CONCLUSION It is concluded in the study that who are exposed to incest perceived a trauma experience that affected the whole family, perceived unbalanced power and role allocation in the family with authoritarian-aggressive and submissive-oppressed roles, and had negative perceptions of family dynamics such as emotional ties, family integrity, and social interaction. IMPLICATIONS TO PRACTICE This study emphasizes the need to restructure the issues of familial trauma, power and role imbalance, and unmet needs within the family while planning for trauma in nursing approaches to children who are victims of incest.
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Affiliation(s)
- Oya Sevcan Orak
- Ondokuz Mayıs University, Faculty of Health Sciences, Department of Nursing/Psychiatric Nursing, Turkey.
| | - Nurten Gülsüm Bayrak
- Giresun University, Faculty of Health Sciences, Department of Nursing/Psychiatric Nursing, Turkey
| | - Elif Güzide Emirza
- Ondokuz Mayıs University, Faculty of Health Sciences, Department of Nursing/Psychiatric Nursing, Turkey
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Learning from patient experiences of projection imaging through the use of online feedback platforms. J Med Imaging Radiat Sci 2023; 54:73-82. [PMID: 36463092 DOI: 10.1016/j.jmir.2022.11.009] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 09/06/2022] [Revised: 11/02/2022] [Accepted: 11/11/2022] [Indexed: 12/03/2022]
Abstract
INTRODUCTION & BACKGROUND Projection radiography remains a well-used diagnostic tool in healthcare, and its use is continually increasing. The volume of feedback collected from patients has grown exponentially but is rarely analysed within the service to meaningfully underpin change. Professions such as nursing currently make use of patient feedback during training yet there is comparatively little use in diagnostic radiography. Research exists into the use of social media during radiotherapy treatment, highlighting how it could be embraced in future research. However, there remains a sparsity of publications discussing the experiences of patients with projection radiography despite its prominence within diagnostic imaging. Online platforms for feedback are available to most industries and readily embraced and used. They are also becoming increasingly available to healthcare providers. This study aimed to assess and analyse the patient experience of projection radiography using the stories of patients via an online platform. METHODOLOGY Recognising that humans do not experience healthcare in a binary way, the authors selected a narrative method as the most appropriate qualitative methodology to analyse and understand 181 patient stories relating to projection radiography from the Care Opinion UK website. Each story was read three times to establish codes and themes and to ensure author familiarity with the patient's words & descriptions. This resulted in 30 empirical codes with the most frequently used being split into three major themes for discussion RESULTS & CONCLUSION: The three major themes considered the radiography experience, the encounter with professionals and service provision. Online sources of feedback provide valuable data for health researchers and provide access to insights which might otherwise go unconsidered. Patients instinctively perceive radiological examinations to result in delays to their care and report surprise when discovering examinations are delivered swiftly, though it remains that innovations such as radiographer-led discharge could be better utilised to enhance the patient experience. In addition, it is evident that administrative functions in diagnostic radiology departments are considered poor and from the descriptions given in the study by patients, the administrative side of the service does not meet their needs. Patient stories demonstrate that radiography is not perceived as vital to patient care and is frequently devalued through the notion that health professions are limited to medical doctor and nurse. The work of radiographers is not valueless to the patient evidenced by their desire to thank staff for their work, but its value is poorly understood and could be further enhanced by embracing online feedback as part of continuing professional and service development.
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Zhang LH, Meng HY, Wang R, Zhang YC, Sun J. Application of narrative nursing in the families of children with biliary atresia: A retrospective study. World J Clin Cases 2021; 9:10557-10565. [PMID: 35004987 PMCID: PMC8686143 DOI: 10.12998/wjcc.v9.i34.10557] [Citation(s) in RCA: 4] [Impact Index Per Article: 1.0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Download PDF] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 08/06/2021] [Revised: 09/08/2021] [Accepted: 10/15/2021] [Indexed: 02/06/2023] Open
Abstract
BACKGROUND Narrative nursing is an important clinical nursing intervention model. It is the practice of patient storytelling to share the essence of nursing. The current clinical intervention for biliary atresia (BA) mainly focuses on disease treatment and does not pay enough attention to the psychological state of family members.
AIM To explore the application value of narrative nursing in the families of children with BA.
METHODS Sixty-four family members of children with BA in our hospital from December 2017 to October 2020 were retrospectively included and were divided into a study group (n = 32) and a control group (n = 32). The control group was provided with routine nursing, while the study group was given narrative nursing on the basis of the control group. The scores of mood state (depression and anxiety), family members’ nursing ability, perceived stress, and nursing job satisfaction of the children’s families were calculated before and after the intervention.
RESULTS Before intervention, there was no significant difference in the self-rating anxiety scale and self-rating depression scale scores between groups (P > 0.05). After intervention, the self-rating anxiety scale and self-rating depression scale scores in the study group were lower than those in the control group (both P = 0.000). Before intervention, the study group adjusted life to meet care needs, evaluated family members and social resources, dealt with personal emotions, responded to needs, and provided assistance, and the adaptive care role scores were not significantly different from those in the control group (P = 0.802, 0.819, 0.694, 0.796, and 0.686, respectively). After intervention, all scores were significantly lower in the study group than in the control group (all P < 0.0001). Before intervention, there was no significant difference in the child post-traumatic stress disorder symptom score (CPSS) score between groups (P = 0.615). After intervention, the CPSS scores were significantly lower than those before intervention in both groups and lower in the study group than in the control group (P < 0.0001). Nursing job satisfaction of the family members of the study group (93.75%) was higher than that of the control group (75.00%) (P = 0.039).
CONCLUSION Narrative nursing with family members of children with BA can effectively alleviate negative emotions, reduce perceptual pressure, and improve nursing ability. Additionally, family members are more satisfied with nursing work.
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Affiliation(s)
- Liang-Hui Zhang
- Department of Children Surgery, Huai’an Maternal and Child Hospital, Huai’an 223001, Jiangsu Province, China
| | - Hong-Yan Meng
- Department of Children Surgery, Huai’an Maternal and Child Hospital, Huai’an 223001, Jiangsu Province, China
| | - Ren Wang
- Department of Children Surgery, Huai’an Maternal and Child Hospital, Huai’an 223001, Jiangsu Province, China
| | - You-Cheng Zhang
- Department of Children Surgery, Huai’an Maternal and Child Hospital, Huai’an 223001, Jiangsu Province, China
| | - Jian Sun
- Department of Children Surgery, Huai’an Maternal and Child Hospital, Huai’an 223001, Jiangsu Province, China
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Casey B, Webb M. Experiences of mental health support workers in mental healthcare practice: Three visual arts narratives. J Psychiatr Ment Health Nurs 2021; 28:1018-1028. [PMID: 34038025 DOI: 10.1111/jpm.12775] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 11/18/2020] [Revised: 04/16/2021] [Accepted: 05/21/2021] [Indexed: 11/27/2022]
Abstract
WHAT IS KNOWN ON THE SUBJECT?: Mental health support workers (MHSWs) are frequently employed in mental health services in order to augment and diversify the workforce and to promote recovery centred care Research shows that while MHSWs positively support service user mental health recovery, these roles are often unclear or not well understood by MHSWs and other mental health practitioners WHAT THE PAPER ADDS TO EXISTING KNOWLEDGE?: Through arts-based research methods, three MHSWs communicated their personal vulnerabilities and anxieties in supporting others with mental health issues; these insights are rarely presented in mental health research. MHSW experiences of not having recovery-oriented expertise recognized or valued by healthcare team were powerfully conveyed through arts narrative. These findings promote recognition of the strengths and contributions of MHSWs to mental health practice. Arts-based inquiry is a means of providing additional depth to what is already known and contributes novel insights regarding the occupational experiences and perceptions of MHSWs. WHAT ARE THE IMPLICATIONS FOR PRACTICE?: Mental health nurses and healthcare teams need to engage fully with recovery-oriented principles acknowledging the vulnerabilities of all practitioners and establishing adequate supervision and support. There needs to be greater clarity concerning roles/scope of practice for MHSWs to enable productive working partnerships in mental health teams. This can be achieved through open communication, education and planning among the wider mental healthcare team. ABSTRACT: Introduction Mental health support workers (MHSWs) make positive contributions to mental health recovery practice yet their roles and support needs are often unclear. This research explored the occupational lived experiences of three MHSWs working in Irish mental healthcare services. Aim The study examined the experiences and perceptions of MHSWs regarding their mental health recovery work. Method A narrative design was used incorporating participatory art-based inquiry as a collaborative means of engaging participants. This innovative methodology enabled exploration and evocative expression of participants' occupational experiences and stories. Results Participants revealed feelings of vulnerability and anxiety regarding personal mental health and supporting the mental health of others; a finding not commonly explored in previous research. MHSW skills and knowledge were evident; however, this expertise and recovery focus was not valued in mental health services. Discussion The strengths and challenges of MHSW engagement in service provision are discussed. Interdisciplinary team integration is explored in terms of contrasting recovery philosophies, practitioner vulnerability and professional demands and imperatives. Implications for practice Mental health teams need to engage with recovery principles, acknowledging strengths and vulnerabilities of all practitioners and establishing adequate supervision and support. Greater clarity and education is required concerning roles/scope of practice for MHSWs to enable productive interdisciplinary partnerships.
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Affiliation(s)
- Briege Casey
- School of Nursing, Psychotherapy and Community Health, Dublin City University, Dublin, Ireland
| | - Margaret Webb
- Creating Contexts for Recovery, Health Service Executive, Dublin, Ireland
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McSherry R, Eost-Telling C, Stevens D, Bailey J, Crompton R, Taylor L, Kingston P, Simpson A. Student Nurses Undertaking Acute Hospital Paid Placements during COVID-19: Rationale for Opting-In? A Qualitative Inquiry. Healthcare (Basel) 2021; 9:healthcare9081001. [PMID: 34442138 PMCID: PMC8391502 DOI: 10.3390/healthcare9081001] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Download PDF] [Figures] [Journal Information] [Subscribe] [Scholar Register] [Received: 07/06/2021] [Revised: 07/22/2021] [Accepted: 07/27/2021] [Indexed: 11/29/2022] Open
Abstract
The research aim was to evaluate the rationale of undergraduate final-year student nurses to undertake paid clinical placements during COVID-19 (Wave 1). The nursing profession reacted innovatively to meet demands placed on the National Health Service during COVID-19. Temporary changes to professional regulation enabled final-year United Kingdom nursing students to voluntarily undertake paid placements in the National Health Service. Neither full-time employees nor full-time students, volunteers undertook a unique hybrid role bolstering the front-line health workforce. Using reflective qualitative inquiry, 17 volunteers evaluated reasoning for entering practice in acute hospitals. Online surveys based around the UK Nursing and Midwifery Council Competency Framework (NMC 2012) were completed weekly for 6 weeks. Data were thematically analysed. Six themes were identified, including sense of duty, and opting-in or out. These highlighted the importance of collaboration and the tripartite relationship between University, host and student during placement, and the influence of these on the learning experience. Several significant insights emerged for nurse education and curricula during pandemics related to patient safety, safety climate and governance. The insights were used to develop a “Student Nurses Placement Framework” with recommendations for Pre-During-Post placement, offering a guide for future nursing workforce recruitment and retention.
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Braithwaite I, Steele AM. Stories From Children's Nurses in Flight: Exploring Experiences of Air Medical Transfers. Air Med J 2021; 40:164-169. [PMID: 33933219 DOI: 10.1016/j.amj.2021.02.004] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 01/09/2021] [Revised: 02/24/2021] [Accepted: 02/25/2021] [Indexed: 10/21/2022]
Abstract
OBJECTIVE Nurses are immersed in stories, and nurses who participate in flight transfers have stories to tell that may hold interest and offer insight for air medical professionals around the world. METHODS Using a narrative inquiry methodology, 5 nurses working for a children's transport service in England were invited to tell stories from their experiences of air medical transfers. The aim of this article was to describe the meanings the nurses assigned to their experiences of flight transfers and to develop an interpretation of the narrative accounts, investigating the implications of the stories. RESULTS This study provides a record of nurses' flight experiences within a predominately road-based children's transport service. The analysis considered the following topics: humor, parental presence on transport, and the joy and fear associated with the work. Implications for the training of nurses who fly were identified; it is recommended that the design of training should place the technical challenges of the work in the context of the emotional challenges. CONCLUSION This article is a timely reflection on the social context of this new nursing experience for any situation around the world, which is seeing expansion of children's air medical transport provision.
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Affiliation(s)
- Ian Braithwaite
- Embrace, Yorkshire and Humber Infant and Children's Transport Service, Sheffield Children's National Health Service Foundation Trust, Barnsley, South Yorkshire, United Kingdom.
| | - Ann-Marie Steele
- Embrace, Yorkshire and Humber Infant and Children's Transport Service, Sheffield Children's National Health Service Foundation Trust, Barnsley, South Yorkshire, United Kingdom
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Ghane G, Cheraghi MA, Pashaeypoor S, Najafi F. Concept analysis of the Four-Season-Symphony of Intellectuality-Spirituality-Ethics-Esthetics (FSS: I SEA) in nursing research. Nurs Forum 2021; 56:693-702. [PMID: 33665837 DOI: 10.1111/nuf.12564] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 09/25/2020] [Revised: 02/13/2021] [Accepted: 02/16/2021] [Indexed: 11/28/2022]
Abstract
BACKGROUND The Four-Season-Symphony of intellectuality, spirituality, ethics, and esthetics (FSS: I SEA) in nursing research is a new concept that has not been addressed in previous nursing theories and studies. AIM This study was conducted to clarify the concept of the FSS: I SEA in nursing research. DESIGN Wilson's method of concept analysis was used. DATA SOURCE Empirical and conceptual literature. REVIEW METHOD This study has been conducted based on Wilson's 11-step approach by searching keywords with Symphony, Rationality, Intellectuality, Spirituality, Ethics, Esthetics, and Nursing research in databases including Google Scholar, PubMed, Scopus, CINAHL, Sid, Oxford Dictionary, Dehkhoda Dictionary, and nursing theory textbook. RESULTS AND CONCLUSION Richness and elegance of the symphony in nursing research cannot be achieved by a single-tool benchmark; rather, a more integrated assessment can be achieved with the use of a tool combining different intellectuality, spirituality, ethics, and esthetics tools. This symphony contains a philosophical and deep understanding of the meanings of researcher, research problem, research process, and symphonic product. Through identifying the facilitators and barriers of this concept, nursing researchers, professors, and practitioners will be able to design and implement their research activities on FSS basis to pave the way for the continued transcendence of comprehensive nursing care.
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Affiliation(s)
- Golnar Ghane
- Department of Medical Surgical Nursing, School of Nursing and Midwifery, Tehran University of Medical Sciences, Tehran, Iran
| | - Mohammad A Cheraghi
- Department of Critical Care and Nursing Management, Spiritual Health Group, Research Center of Quran, Hadith and Medicine, Tehran University of Medical Sciences, Tehran, Iran
| | - Shahzad Pashaeypoor
- Department of Public Health Nursing, School of Nursing and Midwifery, Tehran University of Medical Sciences, Tehran, Iran
| | - Fateme Najafi
- Department of Medical Surgical Nursing, School of Nursing and Midwifery, Tehran University of Medical Sciences, Tehran, Iran
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Ormel I, Magalhaes M, Josephson D, Tracey L, Law S. How to know what to know: Information challenges for women in the diagnostic phase of breast cancer. PATIENT EDUCATION AND COUNSELING 2021; 104:179-185. [PMID: 32646774 DOI: 10.1016/j.pec.2020.06.030] [Citation(s) in RCA: 8] [Impact Index Per Article: 2.0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Subscribe] [Scholar Register] [Received: 10/01/2019] [Revised: 06/03/2020] [Accepted: 06/29/2020] [Indexed: 06/11/2023]
Abstract
OBJECTIVE To explore how women describe efforts to seek, appraise and interpret information during the diagnostic phase of her breast cancer care. METHODS Qualitative interviews with 35 women with breast cancer across Canada, using audio/video recording. Thematic analysis was used to identify topics important to participants (original results published: www.healthexperiences.ca). Secondary analysis of transcripts to identify how women described information flow, content, and management strategies. RESULTS Women adopt different strategies to optimize access to information, while acknowledging the negative effects of information overload and lack of relevant information. They propose small steps towards gathering and managing information, and to focus initially on understanding their illness. CONCLUSION Different strategies can help to ensure that women have the right information, in the right format, at the right time. Some of these strategies include developing guidance on how to 'handle' information, helping healthcare professionals identify patient's information preferences, improving the availability, quality and access to experiential information, and facilitating acces to electronic information that can tailor information. Further research to understand how women handle information can inform strategies to help newly-diagnosed patients navigate available information. PRACTICE IMPLICATIONS Healthcare professionals can work in partnership with patients to tailor reliable information to support informed decision-making.
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Affiliation(s)
- Ilja Ormel
- St. Mary's Research Centre, St. Mary's Hospital, 3880 Avenue Lacombe, Hayes Pavillon, Suite 4720, Montreal, QC, H3T 1M5, Canada.
| | - Mona Magalhaes
- St. Mary's Research Centre, St. Mary's Hospital, 3880 Avenue Lacombe, Hayes Pavillon, Suite 4720, Montreal, QC, H3T 1M5, Canada.
| | - Debbie Josephson
- St. Mary's Hospital, c/o St. Mary's Hospital, 3830 Avenue Lacombe, Montréal, QC, H3T 1M5, Canada.
| | - Linda Tracey
- St. Mary's Hospital, c/o St. Mary's Hospital, 3830 Avenue Lacombe, Montréal, QC, H3T 1M5, Canada.
| | - Susan Law
- St. Mary's Research Centre, St. Mary's Hospital, 3880 Avenue Lacombe, Hayes Pavillon, Suite 4720, Montreal, QC, H3T 1M5, Canada; Department of Family Medicine, McGill University, 5858 Côte-des-Neiges Rd, Montreal, QC, H3S 1Z1, Canada.
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Ng MSN, Hui YH, Law BYS, Wong CL, So WKW. Challenges encountered by patients with end-stage kidney disease in accessing symptom management services: A narrative inquiry. J Adv Nurs 2020; 77:1391-1402. [PMID: 33249651 DOI: 10.1111/jan.14678] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 03/26/2020] [Revised: 09/21/2020] [Accepted: 11/04/2020] [Indexed: 11/27/2022]
Abstract
AIM To understand the storied experiences of accessing symptom management services of patients with end-stage kidney disease (ESKD) who are receiving maintenance dialysis. DESIGN Narrative inquiry. METHODS Ten patients with ESKD who were receiving dialysis were recruited at two regional hospitals in Hong Kong and interviewed three times each between July 2017-July 2018 to capture their narratives. The data were analysed using the narrative inquiry approach from the perspective of Levesque's framework of access to care. RESULTS Five themes emerged from the participants' narratives. The first theme illustrated access to care as a process by which symptom management needs were met. However, clinicians occasionally identified patients based on their diseases instead of their needs and this process was affected differently by interpersonal and system factors. The themes 'building trust' and 'facilitating communication' described interpersonal factors that were essential to maintaining a constructive patient-clinician partnership. The themes 'balancing efficiency' and 'navigating fragmented system' described system-related factors. CONCLUSIONS This study identified the factors that influenced the delivery and/or reception of symptom management services for patients with ESKD who were receiving dialysis. The results suggest that healthcare services should be streamlined based on patients' needs and that this process should address the important elements of trust and communication. IMPACT The study's results suggest potential improvements to symptom management services that would enable patients' needs to be addressed in a timely and humanistic manner.
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Affiliation(s)
| | - Yun Ho Hui
- United Christian Hospital, Hong Kong, China
| | | | - Cho Lee Wong
- The Chinese University of Hong Kong, Hong Kong, China
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Catherine Framp A, McAllister M, Dwyer T. Narrative research methods with vulnerable people: sharing insights. Nurse Res 2019; 27:42-47. [PMID: 31802652 DOI: 10.7748/nr.2019.e1671] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Accepted: 04/04/2019] [Indexed: 11/09/2022]
Abstract
BACKGROUND Families with hereditary illnesses have complex and unique experiences that are important for nurses to understand. In New Zealand, a Maori family predisposed to an aggressive gastric cancer recently participated in research to explore their healthcare experiences. The family constituted a vulnerable group, so the methodology needed to be inclusive and respectful. The authors chose to use narrative research. AIM To share insights from conducting narrative research with a vulnerable family. DISCUSSION Narrative research aligns well with nursing values. Numerous aspects of the methodology help to reduce power imbalance, enhance openness and explore wide-ranging experiences. These include: cultural humility; use of conversational cues rather than scripted research questions; the adoption of an empathic, curious stance; and working in partnership. Each of these aspects helps to foster an environment conducive to full exploration of experiences. People's stories are their own, and so researchers need to exercise humility and meticulous safe-keeping of data so that the whole experience is collaborative. When stories are conveyed to others, effort needs to be applied so that lessons are compelling for others and have generative, change-making potential. CONCLUSION Narrative research is a fitting methodology for nurses researching the experiences of vulnerable populations. Illness can be disempowering, but recounting stories may help participants with healing, adaptation and coping. IMPLICATIONS FOR PRACTICE New knowledge about illness, recovery and nursing care can be generated using a critical approach to analysis. By gaining a deeper understanding of people's experiences of illness, nurse researchers can co-create and share compelling narratives that may create empathy and change.
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Affiliation(s)
- Ann Catherine Framp
- University of the Sunshine Coast, School of Nursing, Midwifery and Paramedicine, Birtinya, Australia
| | - Margaret McAllister
- School of Nursing, Midwifery and Social Sciences, Central Queensland University, Norman Gardens, Australia
| | - Trudy Dwyer
- School of Nursing, Midwifery and Social Sciences, Central Queensland University, Norman Gardens, Australia
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Casey B, Webb M. Imaging Journeys of Recovery and Learning: A Participatory Arts-Based Inquiry. QUALITATIVE HEALTH RESEARCH 2019; 29:833-845. [PMID: 30340448 DOI: 10.1177/1049732318804832] [Citation(s) in RCA: 4] [Impact Index Per Article: 0.7] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Subscribe] [Scholar Register] [Indexed: 06/08/2023]
Abstract
The relationship between processes of mental health recovery and lifelong learning is an area of increasing international interest. Experiences of transformation, positive effects on self-esteem, self-insight, and empowerment have been identified regarding both endeavors. Recognition of these benefits has stimulated collaborative development of educational programs in personal development, self-efficacy, and recovery principles. The importance of evaluating this educational provision has been emphasized; however, there has been little detailed exploration of students' experiences and perceptions of recovery and learning in the context of recovery education programs. In this article, we present a participatory arts-based inquiry with 14 women, including mental health service users, who undertook a recovery training program to support their roles as mental health support workers in Ireland. Participatory visual analysis revealed three recurring themes; the interrelatedness of learning and recovery journeys, knowledge as a source of stability and rescue and the need for resilience in learning and recovery.
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Alteren J. Narratives in student nurses' knowledge development: A hermeneutical research study. NURSE EDUCATION TODAY 2019; 76:51-55. [PMID: 30771609 DOI: 10.1016/j.nedt.2019.01.015] [Citation(s) in RCA: 4] [Impact Index Per Article: 0.7] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Subscribe] [Scholar Register] [Received: 05/24/2018] [Revised: 12/15/2018] [Accepted: 01/28/2019] [Indexed: 06/09/2023]
Abstract
BACKGROUND Knowledge development, and how student nurses learn to be nurses, is essential in nurse education and has implications for quality of care. There is a lack of research concerning how student nurses' knowledge development is expressed through narratives and how they deal with challenges in patient situations in professional learning. OBJECTIVES To clarify the usefulness of narratives in student nurses' knowledge development and the narratives implications for learning in clinical training. DESIGN AND METHODS The study has a qualitative design with field methodology. Data consisted of observations, interviews, and fieldnotes. The data was analysed, and narratives were developed using Gadamer's hermeneutical circle. PARTICIPANTS AND SETTINGS Seven first- and second-year student nurses from a bachelor programme were closely followed in different patient situations during their eight weeks of clinical studies in nursing homes. RESULTS In a sample narrative, a student nurse explained how she reflected on her actions and decisions made when she shielded a patient who was in a difficult situation. CONCLUSION Narratives are useful for the development of student nurses' knowledge in clinical training. Student nurses' decisions and actions in the patient situation are made evident through narratives. Nursing educators and student nurses awareness of the relevance of this knowledge for understanding student nurses learning processes is of importance in professional education. Nursing educators should be more open minded to narratives as a starting point for reflection. Increased use of narratives in professional education will contribute to development of knowledge so that student nurses can manage to face patient situations as long as the situation themselves demands. Areas for further studies are other professional educations, for examples, doctor, physiotherapist, and occupational therapist.
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Affiliation(s)
- Johanne Alteren
- Nord University, Faculty of Nursing and Health Science, Mo I Rana, Norway.
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16
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McSherry R, Timmins F, de Vries JMA, McSherry W. A reflective qualitative appreciative inquiry approach to restoring compassionate care deficits at one United Kingdom health care site. J Nurs Manag 2018; 26:1108-1123. [DOI: 10.1111/jonm.12630] [Citation(s) in RCA: 11] [Impact Index Per Article: 1.6] [Reference Citation Analysis] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Accepted: 02/01/2018] [Indexed: 12/12/2022]
Affiliation(s)
- Robert McSherry
- Development (Independent Consultant); High Consicliffe Darlington; County Durham and Professor (Emeritus) School of Health & Social Care; Teesside University; Middlesbrough TS1 3BA
| | - Fiona Timmins
- School of Nursing and Midwifery; Trinity College Dublin; Dublin Ireland
| | | | - Wilfred McSherry
- Department of Nursing; School of Health and Social Care; Staffordshire University/University Hospitals North Midlands NHS Trust and part-time Professor VID University College; (Haraldsplass Campus), Bergen Norway
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Frozen in a Moment in Time: The Experiences of Mothers Being Diagnosed With HIV Infection. J Assoc Nurses AIDS Care 2017; 29:323-329. [PMID: 29249354 DOI: 10.1016/j.jana.2017.10.003] [Citation(s) in RCA: 3] [Impact Index Per Article: 0.4] [Reference Citation Analysis] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 03/14/2017] [Accepted: 10/05/2017] [Indexed: 11/24/2022]
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18
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Corbally M. Review: Researching domestic violence and abuse in healthcare settings: Challenges and issues. J Res Nurs 2016. [DOI: 10.1177/1744987116651011] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 11/16/2022] Open
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