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For: Galpin J, Barratt P, Ashcroft E, Greathead S, Kenny L, Pellicano E. 'The dots just don't join up': Understanding the support needs of families of children on the autism spectrum. Autism 2017;22:571-584. [PMID: 28449587 DOI: 10.1177/1362361316687989] [Citation(s) in RCA: 53] [Impact Index Per Article: 6.6] [Reference Citation Analysis] [What about the content of this article? (0)] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 01/26/2023]
Number Cited by Other Article(s)
1
Li JL, Washington-Nortey M, Kifle TH, Cotier F, Hoekstra RA. The Role of Extended Family Members in the Lives of Autistic Individuals and Their Parents: A Systematic Review and Meta-Synthesis. Clin Child Fam Psychol Rev 2025;28:507-539. [PMID: 40392445 PMCID: PMC12162707 DOI: 10.1007/s10567-025-00525-7] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Download PDF] [Figures] [Journal Information] [Subscribe] [Scholar Register] [Accepted: 04/30/2025] [Indexed: 05/22/2025]
2
Pye K, Gold L, Le HND, Iacono T. "What My Son Needs Is Me. What I Need Is... Guidance": Caregiver Perspectives About Early Autism Supports Amid Changing Attitudes and Policies. J Autism Dev Disord 2025:10.1007/s10803-025-06850-8. [PMID: 40347382 DOI: 10.1007/s10803-025-06850-8] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Accepted: 04/15/2025] [Indexed: 05/12/2025]
3
Zhang JJ, Wang EN. Enhancing autism care through remote support: A family-centered approach. World J Psychiatry 2025;15:102645. [PMID: 40309586 PMCID: PMC12038657 DOI: 10.5498/wjp.v15.i4.102645] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Download PDF] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 10/25/2024] [Revised: 01/16/2025] [Accepted: 02/12/2025] [Indexed: 03/25/2025]  Open
4
Zheng H, Sun M, Wang A, Tang Q, Zhang Y, Lu J, Chen G. Modifiable Factors Underlying Caregivers' Psychological Support Needs in Pediatric Disability: Through the Lens of Psycho-Behavioral and Social-Environmental Interactions. Healthcare (Basel) 2025;13:625. [PMID: 40150475 PMCID: PMC11942237 DOI: 10.3390/healthcare13060625] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Grants] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 01/21/2025] [Revised: 02/16/2025] [Accepted: 02/28/2025] [Indexed: 03/29/2025]  Open
5
Jordan P, Wallace-Watkin C, Tupou J, Pillar S, Waddington H. 'I wouldn't want one or the other': Understanding parents' preferences for direct support or parent coaching for young autistic children. AUTISM : THE INTERNATIONAL JOURNAL OF RESEARCH AND PRACTICE 2025;29:740-753. [PMID: 39394944 PMCID: PMC11894850 DOI: 10.1177/13623613241287300] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Grants] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 10/14/2024]
6
Leadbitter K, Harrison L, Langhorne S, Ellis C, Smallman R, Pearson A, Hackett L, Kroll L, Dunkerley A, Beach H, Gilbert J, van Gils A, Hutton T, Green J, Bee P, the REACH-ASD Team. The development, feasibility and acceptability of Empower-Autism: A new psychoeducational and psychotherapeutic programme for caregivers of children recently diagnosed with autism. AUTISM : THE INTERNATIONAL JOURNAL OF RESEARCH AND PRACTICE 2025;29:367-381. [PMID: 39291754 PMCID: PMC11816477 DOI: 10.1177/13623613241274566] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Grants] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 09/19/2024]
7
Mangum L, Copeland VC, Orebiyi I, Taylor S, Jones T, Nathan J, Nathan BR, Eack SM. Parental Perceptions of Access to and Utilization of Services for Autistic Children in African American Families: An Exploratory Study. J Racial Ethn Health Disparities 2025:10.1007/s40615-025-02283-2. [PMID: 39875762 DOI: 10.1007/s40615-025-02283-2] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 10/31/2023] [Revised: 12/30/2024] [Accepted: 01/02/2025] [Indexed: 01/30/2025]
8
Li F, Li Q, Shen Q, Zhang X, Leng H, Liu Y, Zheng X. The Support Needs of Parents of Children With Autism Spectrum Disorder: A Qualitative Study Based on the Nurturing Care Framework. J Adv Nurs 2024. [PMID: 39696911 DOI: 10.1111/jan.16681] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Grants] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 07/17/2024] [Revised: 11/21/2024] [Accepted: 12/04/2024] [Indexed: 12/20/2024]
9
Alegría PL, Landim SF, Pérez Valdés VA, Martínez Escudero N, Botelho JN, Branco BHM, Villagrán F, Sandoval C, Marques DCDS, Parrón Carreño T, González MM. Parental Stress in Autistic Children with Poor Oral Hygiene: A Pilot Study to Develop and Validate a Measurement Scale. Healthcare (Basel) 2024;12:2215. [PMID: 39595414 PMCID: PMC11594058 DOI: 10.3390/healthcare12222215] [Citation(s) in RCA: 3] [Impact Index Per Article: 3.0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Download PDF] [Journal Information] [Subscribe] [Scholar Register] [Received: 09/11/2024] [Revised: 10/31/2024] [Accepted: 11/04/2024] [Indexed: 11/26/2024]  Open
10
Gyimah EM, Dassah E, Opoku MP, Nketsia W, Ntoaduro A, Tutu CO, Opoku C, Issaka Z, Mensah PA. From legislation to actual health service: evaluation of health provisions in the disability law of Ghana by adolescents with mobility and visual impairments and their families. BMC Health Serv Res 2024;24:1314. [PMID: 39478543 PMCID: PMC11526718 DOI: 10.1186/s12913-024-11611-x] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 03/07/2024] [Accepted: 09/19/2024] [Indexed: 11/02/2024]  Open
11
Brennan J, Ward OF, Tomeny TS, Davis TE. A Systematic Review of Parental Self-Efficacy in Parents of Autistic Children. Clin Child Fam Psychol Rev 2024;27:878-905. [PMID: 39160428 DOI: 10.1007/s10567-024-00495-2] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Accepted: 08/04/2024] [Indexed: 08/21/2024]
12
Alegría PL, Landim SF, Branco BHM, Carmine F, Birditt K, Sandoval C, González MM. Dental Hygiene Challenges in Children with Autism: Correlation with Parental Stress: A Scoping Review. J Clin Med 2024;13:4675. [PMID: 39200817 PMCID: PMC11355692 DOI: 10.3390/jcm13164675] [Citation(s) in RCA: 3] [Impact Index Per Article: 3.0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Download PDF] [Figures] [Journal Information] [Subscribe] [Scholar Register] [Received: 07/02/2024] [Revised: 07/24/2024] [Accepted: 07/30/2024] [Indexed: 09/02/2024]  Open
13
Trew S. Made to feel different: Families perspectives on external responses to autism and the impacts on family well-being and relationships. AUTISM : THE INTERNATIONAL JOURNAL OF RESEARCH AND PRACTICE 2024;28:2120-2139. [PMID: 38240288 PMCID: PMC11301965 DOI: 10.1177/13623613231221684] [Citation(s) in RCA: 1] [Impact Index Per Article: 1.0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Grants] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 08/07/2024]
14
Battanta NK, Jenni OG, Schaefer C, von Rhein M. Autism spectrum: parents' perspectives reflecting the different needs of different families. BMC Pediatr 2024;24:439. [PMID: 38982431 PMCID: PMC11232266 DOI: 10.1186/s12887-024-04912-x] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Grants] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 03/13/2024] [Accepted: 06/26/2024] [Indexed: 07/11/2024]  Open
15
Pozniak K, King G, Chambers E, Martens R, Earl S, Kraus de Camargo O, McCauley D, Teplicky R, Rosenbaum P. What do parents want from healthcare services? Reports of parents' experiences with pediatric service delivery for their children with disabilities. Disabil Rehabil 2024;46:2670-2683. [PMID: 37419932 DOI: 10.1080/09638288.2023.2229733] [Citation(s) in RCA: 15] [Impact Index Per Article: 15.0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 12/05/2022] [Accepted: 06/21/2023] [Indexed: 07/09/2023]
16
Hughes J, Roberts R, Tarver J, Warters-Louth C, Zhang B, Southward E, Shaw R, Edwards G, Waite J, Pearson E. 'It wasn't the strategies on their own': Exploring caregivers' experiences of accessing services in the development of interventions for autistic people with intellectual disability. AUTISM : THE INTERNATIONAL JOURNAL OF RESEARCH AND PRACTICE 2024;28:1231-1244. [PMID: 37712611 PMCID: PMC11067391 DOI: 10.1177/13623613231196084] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Grants] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 09/16/2023]
17
Pozniak K, Rosenbaum P, Kwok EYL. Tasks performed by parents to enable telepractice for children with communication disorders: an interview study with clinicians and parents. Disabil Rehabil 2024;46:1547-1558. [PMID: 37078372 DOI: 10.1080/09638288.2023.2201509] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 07/20/2022] [Accepted: 04/04/2023] [Indexed: 04/21/2023]
18
George-Levi S, Laslo-Roth R, Ben-Yaakov L. Differences in Interpersonal Resources and Risk Factors Among Mothers and Fathers of Children on the Autism Spectrum: A Serial Mediation Model. J Autism Dev Disord 2024;54:1398-1410. [PMID: 36710298 DOI: 10.1007/s10803-023-05900-3] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Accepted: 01/11/2023] [Indexed: 01/31/2023]
19
McDonnell AA, Page A, Bews-Pugh S, Morgalla KA, Kaur-Johal T, Maher M. Families' experiences of the Low Arousal Approach: a qualitative study. Front Psychol 2024;15:1328825. [PMID: 38596338 PMCID: PMC11002904 DOI: 10.3389/fpsyg.2024.1328825] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Figures] [Journal Information] [Subscribe] [Scholar Register] [Received: 10/27/2023] [Accepted: 03/08/2024] [Indexed: 04/11/2024]  Open
20
Krieger B, Moser A, Morgenthaler T, Beurskens AJHM, Piškur B. Parents' Perceptions: Environments and the Contextual Strategies of Parents to Support the Participation of Children and Adolescents with Autism Spectrum Disorder-A Descriptive Population-Based Study from Switzerland. J Autism Dev Disord 2024;54:871-893. [PMID: 36538129 PMCID: PMC9765345 DOI: 10.1007/s10803-022-05826-2] [Citation(s) in RCA: 3] [Impact Index Per Article: 3.0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Grants] [Track Full Text] [Figures] [Journal Information] [Subscribe] [Scholar Register] [Accepted: 11/11/2022] [Indexed: 12/24/2022]
21
Murphy AN, Pinkerton LM, Morford AE, Risser HJ. Parent-Therapist Partnership Survey: Parent Feedback and Psychometric Properties. J Autism Dev Disord 2024;54:532-543. [PMID: 36329299 PMCID: PMC9633032 DOI: 10.1007/s10803-022-05782-x] [Citation(s) in RCA: 2] [Impact Index Per Article: 2.0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Grants] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Accepted: 09/28/2022] [Indexed: 11/06/2022]
22
Krieger B, Piškur B, Beurskens AJHM, Moser A. Parents' perceptions: Participation patterns and desires for change for children and adolescents with autism spectrum disorder-A descriptive population-based study from Switzerland. Child Care Health Dev 2024;50:e13155. [PMID: 37487595 DOI: 10.1111/cch.13155] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 06/22/2022] [Revised: 01/21/2023] [Accepted: 06/28/2023] [Indexed: 07/26/2023]
23
Smith J, Rabba AS, Cong L, Datta P, Dresens E, Hall G, Heyworth M, Lawson W, Lee P, Lilley R, Syeda N, Ma E, Wang J, Wang R, Yeow CT, Pellicano E. "They Were Saying That I Was a Typical Chinese Mum" : Chinese Parents' Experiences of Parent-Teacher Partnerships for Their Autistic Children. J Autism Dev Disord 2023;53:4888-4900. [PMID: 36149615 PMCID: PMC9510549 DOI: 10.1007/s10803-022-05748-z] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Grants] [Track Full Text] [Download PDF] [Figures] [Journal Information] [Subscribe] [Scholar Register] [Accepted: 09/04/2022] [Indexed: 11/20/2022]
24
Mwinbam MM, Suglo JN, Agyeman YN, Kukeba MW. Family caregivers' experience of care with a child with cerebral palsy: the lived experiences and challenges of caregivers in a resource-limited setting in northern Ghana. BMJ Paediatr Open 2023;7:e001807. [PMID: 37407248 PMCID: PMC10335558 DOI: 10.1136/bmjpo-2022-001807] [Citation(s) in RCA: 1] [Impact Index Per Article: 0.5] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 12/04/2022] [Accepted: 06/22/2023] [Indexed: 07/07/2023]  Open
25
Yates L, Keville S, Ludlow A. The psychological impact of the secondary school transition on families of autistic children. INTERNATIONAL JOURNAL OF DEVELOPMENTAL DISABILITIES 2023;70:1207-1217. [PMID: 39712444 PMCID: PMC11660398 DOI: 10.1080/20473869.2023.2170004] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Subscribe] [Scholar Register] [Received: 08/08/2022] [Revised: 01/13/2023] [Accepted: 01/13/2023] [Indexed: 12/24/2024]
26
Smith J, Rabba AS, Ali A, Datta P, Dresens E, Faragaab N, Hall G, Heyworth M, Ige K, Lawson W, Lilley R, Syeda N, Pellicano E. 'Somali parents feel like they're on the outer': Somali mothers' experiences of parent-teacher relationships for their autistic children. AUTISM : THE INTERNATIONAL JOURNAL OF RESEARCH AND PRACTICE 2023:13623613221146077. [PMID: 36680459 DOI: 10.1177/13623613221146077] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 01/22/2023]
27
Zakirova-Engstrand R, Roll-Pettersson L, Andersson K, Larsson H, Allodi Westling M, Hirvikoski T. Group Psychoeducational Intervention for Grandparents of Young Children with ASD: An Open Feasibility Study. J Autism Dev Disord 2023;53:808-824. [PMID: 34247300 PMCID: PMC8272608 DOI: 10.1007/s10803-021-05189-0] [Citation(s) in RCA: 2] [Impact Index Per Article: 1.0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Download PDF] [Figures] [Journal Information] [Subscribe] [Scholar Register] [Accepted: 07/02/2021] [Indexed: 11/28/2022]
28
Bent CA, Pellicano E, Iacono T, Hudry K. Perspectives from parents of autistic children on participating in early intervention and associated research. AUTISM : THE INTERNATIONAL JOURNAL OF RESEARCH AND PRACTICE 2022:13623613221141540. [PMID: 36510841 DOI: 10.1177/13623613221141540] [Citation(s) in RCA: 6] [Impact Index Per Article: 2.0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 12/15/2022]
29
Evans K, Whitehouse AJO, D’Arcy E, Hayden-Evans M, Wallace K, Kuzminski R, Thorpe R, Girdler S, Milbourn B, Bölte S, Chamberlain A. Perceived Support Needs of School-Aged Young People on the Autism Spectrum and Their Caregivers. INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH 2022;19:15605. [PMID: 36497683 PMCID: PMC9737194 DOI: 10.3390/ijerph192315605] [Citation(s) in RCA: 7] [Impact Index Per Article: 2.3] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Download PDF] [Figures] [Subscribe] [Scholar Register] [Received: 09/30/2022] [Revised: 11/16/2022] [Accepted: 11/17/2022] [Indexed: 06/17/2023]
30
Wong TSM, Shorey S. Experiences of peer support amongst parents of children with neurodevelopmental disorders: A qualitative systematic review. J Pediatr Nurs 2022;67:e92-e99. [PMID: 36115753 DOI: 10.1016/j.pedn.2022.09.004] [Citation(s) in RCA: 4] [Impact Index Per Article: 1.3] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 04/06/2022] [Revised: 08/30/2022] [Accepted: 09/02/2022] [Indexed: 11/24/2022]
31
Panczykowski H, Murphy L, Heyward K, Hupp T. Lived experiences of parents of children with disabilities engaged in a support group incorporating equines. RESEARCH IN DEVELOPMENTAL DISABILITIES 2022;128:104294. [PMID: 35780709 DOI: 10.1016/j.ridd.2022.104294] [Citation(s) in RCA: 1] [Impact Index Per Article: 0.3] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Subscribe] [Scholar Register] [Received: 03/03/2022] [Revised: 06/15/2022] [Accepted: 06/21/2022] [Indexed: 06/15/2023]
32
Lee J, Kaat AJ, Roberts MY. Involving Caregivers of Autistic Toddlers in Early Intervention: Common Practice or Exception to the Norm? AMERICAN JOURNAL OF SPEECH-LANGUAGE PATHOLOGY 2022;31:1755-1770. [PMID: 35749738 PMCID: PMC9531930 DOI: 10.1044/2022_ajslp-21-00246] [Citation(s) in RCA: 4] [Impact Index Per Article: 1.3] [Reference Citation Analysis] [Abstract] [MESH Headings] [Grants] [Track Full Text] [Subscribe] [Scholar Register] [Received: 08/09/2021] [Revised: 11/30/2021] [Accepted: 03/31/2022] [Indexed: 05/26/2023]
33
Emotional and behavioral problems in children with autism spectrum disorder and psychological distress in their parents in Saudi Arabia: The moderating effect of marital relationship satisfaction. J Pediatr Nurs 2022;65:e99-e106. [PMID: 35410735 DOI: 10.1016/j.pedn.2022.03.015] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 10/22/2021] [Revised: 03/27/2022] [Accepted: 03/30/2022] [Indexed: 11/22/2022]
34
Hasson L, Keville S, Gallagher J, Onagbesan D, Ludlow AK. Inclusivity in education for autism spectrum disorders: Experiences of support from the perspective of parent/carers, school teaching staff and young people on the autism spectrum. INTERNATIONAL JOURNAL OF DEVELOPMENTAL DISABILITIES 2022;70:201-212. [PMID: 38481460 PMCID: PMC10930116 DOI: 10.1080/20473869.2022.2070418] [Citation(s) in RCA: 7] [Impact Index Per Article: 2.3] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Subscribe] [Scholar Register] [Received: 12/15/2021] [Accepted: 04/20/2022] [Indexed: 08/30/2024]
35
Enoch J, Dickinson C, Potts J, Subramanian A. An exploratory study on support for caregivers of people with vision impairment in the UK. Ophthalmic Physiol Opt 2022;42:858-871. [PMID: 35416314 PMCID: PMC9320821 DOI: 10.1111/opo.12989] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Download PDF] [Figures] [Journal Information] [Subscribe] [Scholar Register] [Received: 11/24/2021] [Revised: 03/26/2022] [Accepted: 03/28/2022] [Indexed: 11/27/2022]
36
Lipkin M, Crepeau‐Hobson F. The impact of the COVID-19 school closures on families with children with disabilities: A qualitative analysis. PSYCHOLOGY IN THE SCHOOLS 2022;60:PITS22706. [PMID: 35572177 PMCID: PMC9088372 DOI: 10.1002/pits.22706] [Citation(s) in RCA: 9] [Impact Index Per Article: 3.0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Download PDF] [Journal Information] [Subscribe] [Scholar Register] [Received: 03/21/2021] [Revised: 11/15/2021] [Accepted: 03/26/2022] [Indexed: 11/08/2022]
37
Milosevic S, Brookes-Howell L, Randell E, Williams-Thomas R, Delport S, Busse M, Gillespie D, Ahuja AS, McKigney AM, Glarou E, McNamara R. Understanding the support experiences of families of children with autism and sensory processing difficulties: A qualitative study. Health Expect 2022;25:1118-1130. [PMID: 35303380 PMCID: PMC9122432 DOI: 10.1111/hex.13465] [Citation(s) in RCA: 1] [Impact Index Per Article: 0.3] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Download PDF] [Figures] [Journal Information] [Subscribe] [Scholar Register] [Received: 11/10/2021] [Revised: 02/13/2022] [Accepted: 02/23/2022] [Indexed: 01/26/2023]  Open
38
Gore N, Bradshaw J, Hastings R, Sweeney J, Austin D. Early positive approaches to support (E-PAtS): Qualitative experiences of a new support programme for family caregivers of young children with intellectual and developmental disabilities. JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES 2022;35:889-899. [PMID: 35289031 PMCID: PMC9311085 DOI: 10.1111/jar.12993] [Citation(s) in RCA: 3] [Impact Index Per Article: 1.0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Download PDF] [Figures] [Journal Information] [Subscribe] [Scholar Register] [Received: 07/13/2021] [Revised: 02/01/2022] [Accepted: 02/04/2022] [Indexed: 11/30/2022]
39
Muharib R, Dowdy A, Rajaraman A, Jessel J. Contingency-based delay to reinforcement following functional communication training for autistic individuals: A multilevel meta-analysis. AUTISM : THE INTERNATIONAL JOURNAL OF RESEARCH AND PRACTICE 2021;26:761-781. [PMID: 34961394 DOI: 10.1177/13623613211065540] [Citation(s) in RCA: 1] [Impact Index Per Article: 0.3] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 11/15/2022]
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Eggleston M, Eggleston K, Thabrew H, Hennig S, Frampton C. Order out of chaos? Autism spectrum disorder coordinators' impact on service delivery in New Zealand. Australas Psychiatry 2021;29:644-647. [PMID: 33910392 DOI: 10.1177/10398562211009249] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Indexed: 11/15/2022]
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Bhat A. Analysis of the SPARK study COVID-19 parent survey: Early impact of the pandemic on access to services, child/parent mental health, and benefits of online services. Autism Res 2021;14:2454-2470. [PMID: 34591364 PMCID: PMC8578426 DOI: 10.1002/aur.2618] [Citation(s) in RCA: 43] [Impact Index Per Article: 10.8] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Download PDF] [Figures] [Journal Information] [Subscribe] [Scholar Register] [Received: 05/12/2021] [Revised: 08/19/2021] [Accepted: 09/08/2021] [Indexed: 11/21/2022]
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Hermaszewska S, Sin J. End-user perspectives on the development of an online intervention for parents of children on the autism spectrum. AUTISM : THE INTERNATIONAL JOURNAL OF RESEARCH AND PRACTICE 2021;25:1234-1245. [PMID: 33423522 PMCID: PMC8264643 DOI: 10.1177/1362361320984895] [Citation(s) in RCA: 5] [Impact Index Per Article: 1.3] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Download PDF] [Figures] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 11/25/2022]
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Goh JX, Aishworiya R, Ho RCM, Wang W, He HG. A qualitative study exploring experiences and support needs of parents of children with autism spectrum disorder in Singapore. J Clin Nurs 2021;30:3268-3280. [PMID: 33969552 DOI: 10.1111/jocn.15836] [Citation(s) in RCA: 5] [Impact Index Per Article: 1.3] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 03/09/2021] [Revised: 04/08/2021] [Accepted: 04/13/2021] [Indexed: 11/30/2022]
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Srinivasan S, Ekbladh A, Freedman B, Bhat A. Needs assessment in unmet healthcare and family support services: A survey of caregivers of children and youth with autism spectrum disorder in Delaware. Autism Res 2021;14:1736-1758. [PMID: 33876563 DOI: 10.1002/aur.2514] [Citation(s) in RCA: 10] [Impact Index Per Article: 2.5] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 10/14/2020] [Revised: 02/24/2021] [Accepted: 04/01/2021] [Indexed: 11/08/2022]
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Currie G, Szabo J. Social isolation and exclusion: the parents' experience of caring for children with rare neurodevelopmental disorders. Int J Qual Stud Health Well-being 2020;15:1725362. [PMID: 32048917 PMCID: PMC7034477 DOI: 10.1080/17482631.2020.1725362] [Citation(s) in RCA: 59] [Impact Index Per Article: 11.8] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Download PDF] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Indexed: 10/25/2022]  Open
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Arnell S, Jerlinder K, Lundqvist LO. Parents' perceptions and concerns about physical activity participation among adolescents with autism spectrum disorder. AUTISM : THE INTERNATIONAL JOURNAL OF RESEARCH AND PRACTICE 2020;24:2243-2255. [PMID: 32713182 PMCID: PMC7543004 DOI: 10.1177/1362361320942092] [Citation(s) in RCA: 15] [Impact Index Per Article: 3.0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Download PDF] [Figures] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 11/23/2022]
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Families under pressure: stress and quality of life in parents of children with an intellectual disability. Ir J Psychol Med 2020:1-8. [DOI: 10.1017/ipm.2020.4] [Citation(s) in RCA: 20] [Impact Index Per Article: 4.0] [Reference Citation Analysis] [Abstract] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Indexed: 11/06/2022]
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Neupane KG. Autism Spectrum Disorder: The Parental Experience. J Psychosoc Nurs Ment Health Serv 2020;58:14-19. [PMID: 31710368 DOI: 10.3928/02793695-20191022-02] [Citation(s) in RCA: 2] [Impact Index Per Article: 0.4] [Reference Citation Analysis] [Abstract] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 05/03/2019] [Accepted: 08/16/2019] [Indexed: 11/20/2022]
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Decroocq C, Soulas T, Lichtlé J, Sankey C, Engelberg A, Cappe E. Facilitators' perspectives on a psychoeducational program for parents of an autistic child. AUTISM : THE INTERNATIONAL JOURNAL OF RESEARCH AND PRACTICE 2020;24:1273-1285. [PMID: 31969009 DOI: 10.1177/1362361319899766] [Citation(s) in RCA: 5] [Impact Index Per Article: 1.0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 12/11/2022]
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Blake L, Bray L, Carter B. "It's a lifeline": Generating a sense of social connectedness through befriending parents of disabled children or children with additional need. PATIENT EDUCATION AND COUNSELING 2019;102:2279-2285. [PMID: 31327482 DOI: 10.1016/j.pec.2019.07.012] [Citation(s) in RCA: 11] [Impact Index Per Article: 1.8] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Subscribe] [Scholar Register] [Received: 03/08/2019] [Revised: 07/01/2019] [Accepted: 07/10/2019] [Indexed: 06/10/2023]
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