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For: Staunton E, Kehoe C, Sharkey L. Families under pressure: stress and quality of life in parents of children with an intellectual disability. Ir J Psychol Med. [DOI: 10.1017/ipm.2020.4] [Citation(s) in RCA: 20] [Impact Index Per Article: 4.0] [Reference Citation Analysis] [What about the content of this article? (0)] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Indexed: 11/06/2022]
Number Cited by Other Article(s)
1
Cheng S, Li J, Li Q, Li X, Luo Y. Family quality of life of parents of children with intellectual disability: Do psychological stress and parental involvement matter? JOURNAL OF INTELLECTUAL DISABILITIES : JOID 2025;29:331-348. [PMID: 38772005 DOI: 10.1177/17446295241254624] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Subscribe] [Scholar Register] [Indexed: 05/23/2024]
2
Gadot L, Segev E, Fine M. Work-Family Conflict, Parental Stress, and Work Centrality Among Parents of 0-4-Year-Old Children with Neurodevelopmental Disorders. J Autism Dev Disord 2025:10.1007/s10803-025-06889-7. [PMID: 40397049 DOI: 10.1007/s10803-025-06889-7] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Accepted: 05/11/2025] [Indexed: 05/22/2025]
3
Apis A, Nunes BC, Vilella T, Pereira RCM, Pilotto RF, de Avó LRDS, Melaragno MI, Germano CMR, Melo DG. Quality of Life of Families Who Have Children With Cornelia de Lange Syndrome in Brazil: Opportunities for Improvement. Am J Med Genet A 2025:e64120. [PMID: 40395212 DOI: 10.1002/ajmg.a.64120] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Grants] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 11/04/2024] [Accepted: 05/09/2025] [Indexed: 05/22/2025]
4
Merton C, Gwaltney A, Booman A, Potter SN, Wheeler AC, Barbieri-Welge RL, Horowitz LT, Hundley RJ, Bird LM, Tan WH, Sadhwani A. Parental stress and family quality of life in families of individuals living with Angelman syndrome. MEDRXIV : THE PREPRINT SERVER FOR HEALTH SCIENCES 2025:2025.05.07.25327165. [PMID: 40385450 PMCID: PMC12083606 DOI: 10.1101/2025.05.07.25327165] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Track Full Text] [Subscribe] [Scholar Register] [Indexed: 05/20/2025]
5
Bel-Fenellós C, Biencinto-López C, Orio-Aparicio C, da Silva-Mori X, Tenorio-Castaño JA, Lapunzina P, Nevado J. Family well-being in families with children and young people with Wolf-Hirschhorn Syndrome. RESEARCH IN DEVELOPMENTAL DISABILITIES 2025;160:104974. [PMID: 40112494 DOI: 10.1016/j.ridd.2025.104974] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Subscribe] [Scholar Register] [Received: 09/29/2024] [Revised: 03/08/2025] [Accepted: 03/10/2025] [Indexed: 03/22/2025]
6
Novak-Pavlic M, Grgić V, Vlašić K, Ilicic AM, Dežmar D, Abramović I, Di Rezze B, Macedo L, Rosenbaum P. Examining the impact and implementation of the ENabling VISions And Growing Expectations (ENVISAGE) program in Croatia: a discourse analysis pilot study. Disabil Rehabil 2025;47:1501-1511. [PMID: 39084314 DOI: 10.1080/09638288.2024.2375436] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 01/30/2024] [Revised: 05/13/2024] [Accepted: 06/01/2024] [Indexed: 08/02/2024]
7
Sheidanik S, Savabi-Esfahani M, Ghamarani A, Erfani A. Predictors of Fertility Intention in Parents with Educable Intellectually Disabled Children in Isfahan, Iran. IRANIAN JOURNAL OF NURSING AND MIDWIFERY RESEARCH 2025;30:216-220. [PMID: 40275915 PMCID: PMC12017656 DOI: 10.4103/ijnmr.ijnmr_267_23] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Download PDF] [Subscribe] [Scholar Register] [Received: 09/05/2023] [Revised: 11/11/2024] [Accepted: 11/24/2024] [Indexed: 04/26/2025]
8
Piekema L, ten Brug A, Waninge A, van der Putten A. Attitudes of support people: a key element when implementing technologies for people with intellectual and visual disabilities. Disabil Rehabil Assist Technol 2025;20:432-443. [PMID: 39113576 PMCID: PMC11789705 DOI: 10.1080/17483107.2024.2387774] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 01/17/2024] [Revised: 05/27/2024] [Accepted: 07/20/2024] [Indexed: 01/28/2025]
9
Dimitrova E, Kouroupa A, Totsika V. Resilience in Families of Autistic Children and Children With Intellectual Disability During the COVID-19 Pandemic. AMERICAN JOURNAL ON INTELLECTUAL AND DEVELOPMENTAL DISABILITIES 2025;130:24-40. [PMID: 39709990 DOI: 10.1352/1944-7558-130.1.24] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Subscribe] [Scholar Register] [Received: 10/30/2023] [Accepted: 07/23/2024] [Indexed: 12/24/2024]
10
Barratt M, Lewis P, Duckworth N, Jojo N, Malecka V, Tomsone S, Rituma D, Wilson NJ. Parental Experiences of Quality of Life When Caring for Their Children With Intellectual Disability: A Meta-Aggregation Systematic Review. JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES 2025;38:e70005. [PMID: 39763193 PMCID: PMC11724350 DOI: 10.1111/jar.70005] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 12/03/2023] [Revised: 11/11/2024] [Accepted: 12/15/2024] [Indexed: 01/11/2025]
11
Lu JH, Wei H, Zhang Y, Fei F, Huang HY, Dong QJ, Chen J, Ao DQ, Chen L, Li TY, Li Y, Dai Y. Effects of remote support courses on parental mental health and child development in autism: A randomized controlled trial. World J Psychiatry 2024;14:1892-1904. [PMID: 39704371 PMCID: PMC11622010 DOI: 10.5498/wjp.v14.i12.1892] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 08/28/2024] [Revised: 09/22/2024] [Accepted: 10/11/2024] [Indexed: 11/27/2024]  Open
12
Yip A, Mo YH, Yip J, Tsui Z, Fong FF, Chu PM. Navigating a New Normal: A Qualitative Look at Long-Term Care Planning for Children with Intellectual Disabilities Post-COVID-19. Healthcare (Basel) 2024;12:2512. [PMID: 39765939 PMCID: PMC11728057 DOI: 10.3390/healthcare12242512] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 10/30/2024] [Revised: 11/22/2024] [Accepted: 12/09/2024] [Indexed: 01/15/2025]  Open
13
Jia M, Hu F, Yang D. Effects of different exercise modalities on pediatric and adolescent populations with developmental disorders: a network meta-analysis of randomized controlled trials. Eur J Pediatr 2024;184:18. [PMID: 39546034 DOI: 10.1007/s00431-024-05858-z] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 05/30/2024] [Revised: 10/10/2024] [Accepted: 10/14/2024] [Indexed: 11/17/2024]
14
Reyes-Martín J, Simó-Pinatella D, Andrés A. Emotional Reactions of Professionals to Challenging Behaviors in People with Intellectual and Developmental Disability. Behav Sci (Basel) 2024;14:707. [PMID: 39199103 PMCID: PMC11351142 DOI: 10.3390/bs14080707] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Grants] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 06/17/2024] [Revised: 08/09/2024] [Accepted: 08/10/2024] [Indexed: 09/01/2024]  Open
15
Lusky-Weisrose E, Klebanov B, Friedman-Hauser G, Avitan I, Katz C. Online sexual abuse of children with disabilities: Analyzing reports of social workers' case files in Israel. CHILD ABUSE & NEGLECT 2024;154:106869. [PMID: 38850752 DOI: 10.1016/j.chiabu.2024.106869] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Subscribe] [Scholar Register] [Received: 09/27/2023] [Revised: 02/22/2024] [Accepted: 05/22/2024] [Indexed: 06/10/2024]
16
Leonard R, Hughes N, Forbes T, Brown M, Marsh L, Truesdale M, Todd S, Linden M. Effectiveness of Online Programmes for Family Carers of People with Intellectual Disabilities: Systematic Review of the International Evidence Base. Healthcare (Basel) 2024;12:1349. [PMID: 38998883 PMCID: PMC11241307 DOI: 10.3390/healthcare12131349] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Grants] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 05/20/2024] [Revised: 06/17/2024] [Accepted: 07/03/2024] [Indexed: 07/14/2024]  Open
17
Karni-Vizer N, Brusilovskiy E, Salzer M. Experiences of verbal violence among people with intellectual disabilities in Israel. JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES 2024;37:e13248. [PMID: 38785135 DOI: 10.1111/jar.13248] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 06/16/2023] [Revised: 04/26/2024] [Accepted: 05/03/2024] [Indexed: 05/25/2024]
18
Aldosari MS, Alzhrani AJ. Evaluating Saudi Parental Interagency on Collaborative Initiatives for Successful Post-Secondary Transition of Students with Intellectual Disabilities. JOURNAL OF INTELLECTUAL DISABILITIES : JOID 2024:17446295241262565. [PMID: 38881272 DOI: 10.1177/17446295241262565] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Subscribe] [Scholar Register] [Indexed: 06/18/2024]
19
Täljedal T, Granlund M, Osman F, Norén Selinus E, Fängström K. Parenting children with disabilities in Sweden: a cluster-analysis of parenting stress and sufficiency of informal and formal support. Front Psychol 2024;15:1389995. [PMID: 38882520 PMCID: PMC11177875 DOI: 10.3389/fpsyg.2024.1389995] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Figures] [Journal Information] [Subscribe] [Scholar Register] [Received: 02/22/2024] [Accepted: 05/15/2024] [Indexed: 06/18/2024]  Open
20
Međaković J, Čivljak A, Zorčec T, Vučić V, Ristić-Medić D, Veselinović A, Čivljak M, Puljak L. Perceptions on support, challenges and needs among parents and caregivers of children with developmental disabilities in Croatia, North Macedonia and Serbia: a cross-sectional study. BMC Pediatr 2024;24:297. [PMID: 38702636 PMCID: PMC11067112 DOI: 10.1186/s12887-024-04770-7] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 07/05/2023] [Accepted: 04/16/2024] [Indexed: 05/06/2024]  Open
21
McDonnell AA, Page A, Bews-Pugh S, Morgalla KA, Kaur-Johal T, Maher M. Families' experiences of the Low Arousal Approach: a qualitative study. Front Psychol 2024;15:1328825. [PMID: 38596338 PMCID: PMC11002904 DOI: 10.3389/fpsyg.2024.1328825] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Figures] [Journal Information] [Subscribe] [Scholar Register] [Received: 10/27/2023] [Accepted: 03/08/2024] [Indexed: 04/11/2024]  Open
22
Hagenaar DA, Bindels-de Heus KGCB, Lubbers K, Ten Hoopen LW, Rietman AB, de Nijs PFA, Hillegers MHJ, Moll HA, de Wit MCY, Dieleman GC, Mous SE. Child characteristics associated with child quality of life and parenting stress in Angelman syndrome. JOURNAL OF INTELLECTUAL DISABILITY RESEARCH : JIDR 2024;68:248-263. [PMID: 38009976 DOI: 10.1111/jir.13106] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Grants] [Track Full Text] [Subscribe] [Scholar Register] [Received: 11/24/2022] [Revised: 10/23/2023] [Accepted: 10/24/2023] [Indexed: 11/29/2023]
23
Scheibner M, Scheibner C, Hornemann F, Arélin M, Hennig YD, Kiep H, Wurst U, Merkenschlager A, Gburek-Augustat J. The Impact of Demographic Characteristics on Parenting Stress among Parents of Children with Disabilities: A Cross-Sectional Study. CHILDREN (BASEL, SWITZERLAND) 2024;11:239. [PMID: 38397351 PMCID: PMC10887938 DOI: 10.3390/children11020239] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Subscribe] [Scholar Register] [Received: 01/10/2024] [Revised: 02/07/2024] [Accepted: 02/10/2024] [Indexed: 02/25/2024]
24
Scheibner C, Scheibner M, Hornemann F, Arélin M, Hennig YD, Kiep H, Wurst U, Merkenschlager A, Gburek-Augustat J. Parenting stress in families of children with disabilities: Impact of type of disability and assessment of attending paediatricians. Child Care Health Dev 2024;50:e13193. [PMID: 37908180 DOI: 10.1111/cch.13193] [Citation(s) in RCA: 2] [Impact Index Per Article: 2.0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 07/03/2022] [Revised: 07/23/2023] [Accepted: 10/11/2023] [Indexed: 11/02/2023]
25
Pereira RCM, Apis A, Dos Santos TR, de Avó LRDS, Pilotto RF, Germano CMR, Melo DG. Quality of life of Brazilian families who have children with Williams syndrome. JOURNAL OF INTELLECTUAL DISABILITIES : JOID 2023;27:794-807. [PMID: 35543661 DOI: 10.1177/17446295221079583] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Subscribe] [Scholar Register] [Indexed: 06/14/2023]
26
de Kuijper G, Fokkema T, Jansen M, Hoekstra PJ, de Bildt A. Difficulties in Addressing Diagnostic, Treatment and Support Needs in Individuals with Intellectual Disability and Persistent Challenging Behaviours: A Descriptive File Study of Referrals to an Expertise Centre. INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH 2023;20:6365. [PMID: 37510597 PMCID: PMC10378833 DOI: 10.3390/ijerph20146365] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Grants] [Track Full Text] [Subscribe] [Scholar Register] [Received: 04/18/2023] [Revised: 06/23/2023] [Accepted: 07/13/2023] [Indexed: 07/30/2023]
27
Lo TLT, Wan AHY, Fong TCT, Wong PKS, Lo HHM, Chan CKP, Ho RTH. Protocol for a mixed-methods randomised controlled trial evaluating the effectiveness of a dyadic expressive arts-based intervention in improving the psychosocial well-being of children with intellectual disability in special schools and their mothers. BMJ Open 2023;13:e067239. [PMID: 37419633 PMCID: PMC10335407 DOI: 10.1136/bmjopen-2022-067239] [Citation(s) in RCA: 1] [Impact Index Per Article: 0.5] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Grants] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 08/08/2022] [Accepted: 06/15/2023] [Indexed: 07/09/2023]  Open
28
Kerr J, Sharry J, Wilson C. Parents' experiences of raising adolescents with intellectual or developmental disabilities. JOURNAL OF INTELLECTUAL & DEVELOPMENTAL DISABILITY 2023;48:206-214. [PMID: 39815910 DOI: 10.3109/13668250.2022.2057843] [Citation(s) in RCA: 4] [Impact Index Per Article: 2.0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Subscribe] [Scholar Register] [Indexed: 01/18/2025]
29
Chaudhry N, Sattar R, Kiran T, Wan MW, Husain M, Hidayatullah S, Ali B, Shafique N, Suhag Z, Saeed Q, Maqbool S, Husain N. Supporting Depressed Mothers of Young Children with Intellectual Disability: Feasibility of an Integrated Parenting Intervention in a Low-Income Setting. CHILDREN (BASEL, SWITZERLAND) 2023;10:913. [PMID: 37371145 DOI: 10.3390/children10060913] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Grants] [Track Full Text] [Subscribe] [Scholar Register] [Received: 02/15/2023] [Revised: 05/15/2023] [Accepted: 05/15/2023] [Indexed: 06/29/2023]
30
Adaptation of Parents Raising a Child with ASD: The Role of Positive Perceptions, Coping, Self-efficacy, and Social Support. J Autism Dev Disord 2023;53:1224-1242. [PMID: 35507296 DOI: 10.1007/s10803-022-05537-8] [Citation(s) in RCA: 12] [Impact Index Per Article: 6.0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Accepted: 03/16/2022] [Indexed: 10/18/2022]
31
Boeije H, Leemrijse C, Zonneveld E, van Schelven F. 'I cannot be missed yet': A qualitative study of carers of family members with an intellectual disability about long-term care planning during the COVID-19 pandemic. JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES 2022;36:310-319. [PMID: 36509109 PMCID: PMC9877928 DOI: 10.1111/jar.13060] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Download PDF] [Journal Information] [Subscribe] [Scholar Register] [Received: 02/03/2022] [Revised: 09/29/2022] [Accepted: 11/30/2022] [Indexed: 12/14/2022]
32
Alnahdi GH, Alwadei A, Woltran F, Schwab S. Measuring Family Quality of Life: Scoping Review of the Available Scales and Future Directions. INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH 2022;19:15473. [PMID: 36497550 PMCID: PMC9738839 DOI: 10.3390/ijerph192315473] [Citation(s) in RCA: 5] [Impact Index Per Article: 1.7] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Figures] [Subscribe] [Scholar Register] [Received: 10/28/2022] [Revised: 11/18/2022] [Accepted: 11/19/2022] [Indexed: 06/17/2023]
33
Kaçan H, Bayram Değer V, Sakız H. Outcomes of genital hygiene and anxiety training for mothers of girls with profound intellectual disabilities: A randomized controlled experiment. INTERNATIONAL JOURNAL OF DEVELOPMENTAL DISABILITIES 2022;70:651-664. [PMID: 38983497 PMCID: PMC11229722 DOI: 10.1080/20473869.2022.2129126] [Citation(s) in RCA: 1] [Impact Index Per Article: 0.3] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Subscribe] [Scholar Register] [Received: 04/28/2022] [Accepted: 09/22/2022] [Indexed: 07/11/2024]
34
Ma BX, Kong YM, Zhang XY, Zhang YT, He Q. Analysis of misdiagnosis of children with autism spectrum disorders in China. Clin Child Psychol Psychiatry 2022;27:1065-1068. [PMID: 35973072 DOI: 10.1177/13591045221119936] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Indexed: 11/15/2022]
35
Zonneveld E, van Schelven F, Boeije H. Effects of the COVID-19 pandemic on quality of life among relatives of individuals with intellectual disabilities: A longitudinal study. JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES 2022;36:68-77. [PMID: 36134473 PMCID: PMC9539069 DOI: 10.1111/jar.13035] [Citation(s) in RCA: 3] [Impact Index Per Article: 1.0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Download PDF] [Journal Information] [Subscribe] [Scholar Register] [Received: 01/28/2022] [Revised: 08/31/2022] [Accepted: 09/06/2022] [Indexed: 11/30/2022]
36
van den Driessen Mareeuw FA, Coppus AMW, Delnoij DMJ, de Vries E. Good health care for a good life? The case of down syndrome. JOURNAL OF POLICY AND PRACTICE IN INTELLECTUAL DISABILITIES 2022. [DOI: 10.1111/jppi.12443] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 11/28/2022]
37
Moonen X, Festen D, Bakker-van Gijsel E, Vervoort-Schel J. A Dutch Perspective on Two Health Related Issues Regarding Children and Adolescents with Intellectual Disabilities. INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH 2022;19:11698. [PMID: 36141966 PMCID: PMC9517279 DOI: 10.3390/ijerph191811698] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Subscribe] [Scholar Register] [Received: 07/13/2022] [Revised: 09/13/2022] [Accepted: 09/14/2022] [Indexed: 06/16/2023]
38
Panczykowski H, Murphy L, Heyward K, Hupp T. Lived experiences of parents of children with disabilities engaged in a support group incorporating equines. RESEARCH IN DEVELOPMENTAL DISABILITIES 2022;128:104294. [PMID: 35780709 DOI: 10.1016/j.ridd.2022.104294] [Citation(s) in RCA: 1] [Impact Index Per Article: 0.3] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Subscribe] [Scholar Register] [Received: 03/03/2022] [Revised: 06/15/2022] [Accepted: 06/21/2022] [Indexed: 06/15/2023]
39
Burke T, Deffew A, Stafford O, Docherty C, Burke S, Mostert R, van Loon J, Lombardi M, Vaughan M, Brickell R, Keogh M, Mahon W, O'Halloran D. Quality of Life Outcomes in a Community Cohort of Adults With an Intellectual Disability Using the Personal Outcome Scale. FRONTIERS IN REHABILITATION SCIENCES 2022;3:848492. [PMID: 36188891 PMCID: PMC9397816 DOI: 10.3389/fresc.2022.848492] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Grants] [Track Full Text] [Download PDF] [Figures] [Subscribe] [Scholar Register] [Received: 01/04/2022] [Accepted: 02/22/2022] [Indexed: 11/19/2022]
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Fucà E, Costanzo F, Ursumando L, Vicari S. Parenting Stress in Mothers of Children and Adolescents with Down Syndrome. J Clin Med 2022;11:jcm11051188. [PMID: 35268278 PMCID: PMC8911183 DOI: 10.3390/jcm11051188] [Citation(s) in RCA: 12] [Impact Index Per Article: 4.0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Download PDF] [Figures] [Journal Information] [Subscribe] [Scholar Register] [Received: 01/15/2022] [Revised: 02/18/2022] [Accepted: 02/21/2022] [Indexed: 12/04/2022]  Open
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Beheshti SZ, Hosseini SS, Maroufizadeh S, Almasi-Hashiani A. Occupational performance of children with autism spectrum disorder and quality of life of their mothers. BMC Res Notes 2022;15:18. [PMID: 35033183 PMCID: PMC8760686 DOI: 10.1186/s13104-021-05890-4] [Citation(s) in RCA: 3] [Impact Index Per Article: 1.0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Download PDF] [Journal Information] [Subscribe] [Scholar Register] [Received: 05/03/2021] [Accepted: 12/21/2021] [Indexed: 11/10/2022]  Open
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Deb S, Limbu B. Support staff liaising effectively with family caregivers: Findings from a co-design event and recommendation for a staff training resource. Front Psychiatry 2022;13:977442. [PMID: 36245872 PMCID: PMC9555056 DOI: 10.3389/fpsyt.2022.977442] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Download PDF] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 06/24/2022] [Accepted: 08/16/2022] [Indexed: 12/02/2022]  Open
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Vervoort-Schel J, Mercera G, Wissink I, Van der Helm P, Lindauer R, Moonen X. Prevalence of and relationship between adverse childhood experiences and family context risk factors among children with intellectual disabilities and borderline intellectual functioning. RESEARCH IN DEVELOPMENTAL DISABILITIES 2021;113:103935. [PMID: 33756254 DOI: 10.1016/j.ridd.2021.103935] [Citation(s) in RCA: 12] [Impact Index Per Article: 3.0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Subscribe] [Scholar Register] [Received: 09/30/2020] [Revised: 01/12/2021] [Accepted: 03/08/2021] [Indexed: 06/12/2023]
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Ebadi M, Samadi SA, Mardani-Hamooleh M, Seyedfatemi N. Living under psychosocial pressure: Perception of mothers of children with autism spectrum disorders. JOURNAL OF CHILD AND ADOLESCENT PSYCHIATRIC NURSING 2021;34:212-218. [PMID: 33734525 DOI: 10.1111/jcap.12310] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 08/30/2020] [Revised: 01/19/2021] [Accepted: 03/01/2021] [Indexed: 11/30/2022]
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Jenaro C, Flores N, Gutiérrez-Bermejo B, Vega V, Pérez C, Cruz M. Parental Stress and Family Quality of Life: Surveying Family Members of Persons with Intellectual Disabilities. INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH 2020;17:E9007. [PMID: 33287284 PMCID: PMC7731363 DOI: 10.3390/ijerph17239007] [Citation(s) in RCA: 13] [Impact Index Per Article: 2.6] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Download PDF] [Figures] [Subscribe] [Scholar Register] [Received: 11/02/2020] [Revised: 11/27/2020] [Accepted: 11/28/2020] [Indexed: 11/17/2022]
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