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Bennett CR, Weaver C, Coats HL, Hendricks-Ferguson VL. "Music Played a Role in Saving My Life and Getting Me Through All of This": A Descriptive Qualitative Study of Hope in Adolescents and Young Adults Living With Advanced Cancer. JOURNAL OF PEDIATRIC HEMATOLOGY/ONCOLOGY NURSING 2024; 41:399-407. [PMID: 39584715 DOI: 10.1177/27527530241286008] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Subscribe] [Scholar Register] [Indexed: 11/26/2024]
Abstract
Background: Adolescents and young adults (AYAs) living with advanced cancer may experience a heightened risk for existential distress. Addressing AYAs' hopes can stimulate a dialogue about their concerns, values, and goals, provide a path to holistically support their existential needs, and potentially alleviate their distress. This study aimed to evaluate hope's role in a sample of AYAs living with advanced cancer. Method: This study used a Husserlian phenomenology-informed descriptive qualitative research design to elicit AYAs' experiences with hope while living with advanced cancer. Participants were virtually recruited from an academic medical center and an online non-profit organization. Thematic analyses were performed across the data set to identify final themes. Results: Fifteen AYAs aged 12-21 years diagnosed with advanced hematological (80%) or solid (20%) malignancies participated in this study. A main theme of Simple Supports of Hope with a subtheme of Diversion was identified. Participants described music as a form of diversion, which supported their hope. Participants found listening to music calming and comforting and helped them cope with their distress. Performing music provided a creative outlet for negative feelings associated with cancer treatment. Participants reported creating music transformed and deintensified the treatment environment and helped spread hope to healthcare staff. Discussion: AYAs may intentionally use music to improve emotional expression, empowerment, connection, and coping strategies throughout the treatment process for cancer. Additional research needs to be conducted exploring the use of music interventions such as therapeutic songwriting or compositional music therapy to assist AYAs with building coping strategies during treatment for cancer.
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Affiliation(s)
- C Robert Bennett
- Division of Nursing Research, Mayo Clinic Arizona, Phoenix, AZ, USA
| | - Crystal Weaver
- Myrtle E. and Earl E. Walker College of Health Professions, Maryville University, Town and Country, MO, USA
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Szmaglinska M, Kirk D, Andrew L. Reporting and Mapping Research Evidence on Perceptions of Clinical Hypnosis Among the General Population and Patients Receiving Health Care Including Cancer Care: A Scoping Review. Int J Clin Exp Hypn 2024; 72:29-50. [PMID: 38060693 DOI: 10.1080/00207144.2023.2276457] [Citation(s) in RCA: 2] [Impact Index Per Article: 2.0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 05/24/2023] [Revised: 08/21/2023] [Accepted: 08/28/2023] [Indexed: 02/02/2024]
Abstract
Despite empirical evidence supporting clinical hypnosis for numerous conditions, its utilization in healthcare is limited due to skepticism and misconceptions. This review identifies and maps research on clinical hypnosis perceptions among the general population, healthcare patients, and more specifically patients with cancer. A systematic search following JBI PRISMA ScR guidelines was conducted in EBSCOhost, ProQuest, PubMed, and PMC, resulting in 18 peer-reviewed, English language articles (2000-2023). Most studies employed quantitative methods, which were complemented by some qualitative and one mixed-methods approach. The results found attitudes toward hypnotherapy, especially when administered by licensed professionals, are consistently positive; however, awareness of hypnosis remains low within the healthcare sector, particularly in cancer care. Although hypnotherapy was found to be useful, misinformation, a lack of understanding, and awareness persist. Few studies address the reasons behind people's opinions or focus on integrating hypnotherapy into healthcare. Research investigating hypnosis attitudes in cancer care is scant, necessitating further exploration.
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Affiliation(s)
- Malwina Szmaglinska
- School of Nursing and Midwifery, Edith Cowan University, Joondalup, Australia
| | - Deborah Kirk
- School of Nursing and Midwifery, Edith Cowan University, Joondalup, Australia
| | - Lesley Andrew
- School of Nursing and Midwifery, Edith Cowan University, Joondalup, Australia
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3
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Eseadi C, Ngwu MO. Significance of music therapy in treating depression and anxiety disorders among people with cancer. World J Clin Oncol 2023; 14:69-80. [PMID: 36908676 PMCID: PMC9993142 DOI: 10.5306/wjco.v14.i2.69] [Citation(s) in RCA: 8] [Impact Index Per Article: 4.0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Download PDF] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 12/29/2022] [Revised: 01/16/2023] [Accepted: 02/07/2023] [Indexed: 02/21/2023] Open
Abstract
Globally, cancer cases and mortality have recently escalated and have attracted global concern. The clinical diagnosis and manifestation of cancer can result in significant mental health issues like depression and anxiety disorders. The tendency of people with cancer to suffer from psychological disorders such as anxiety and depression is usually high. A significant number of deaths related to cancer may likely not be from the killer disease but from psychological disorders associated with the illness. The utilization of music as a remedial approach to healing mental disorders cannot be overstated. Thus, identifying the impacts of music therapy in dealing with depression and anxiety disorders among people with cancer is relevant, as the majority of methods used in treating cancer have some side effects which may trigger psychological disorders in cancer patients. Ultimately, this study explored the significance of music therapy in treating depression and anxiety disorders among people with cancer. To achieve the aim of this study, the authors employed a narrative literature review to investigate the significance of music therapy in addressing depression and anxiety disorders among people with cancer. The type of literature review employed in this study is to provide an understanding of the selected research papers. The review found that music therapy significantly reduces depression and anxiety disorders among breast cancer, lung cancer, prostate cancer, and colorectal cancer patients. It is needful for healthcare providers to incorporate music therapy interventions while treating people with cancer. This will help reduce cancer deaths resulting from psychological disorders rather than the killer disease, cancer. However, the standardized procedures and evaluation criteria for applying music-based intervention strategies in oncology medicine still need to be further established and improved.
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Affiliation(s)
- Chiedu Eseadi
- Department of Educational Psychology, University of Johannesburg, Gauteng 2006, South Africa
| | - Millicent O Ngwu
- Department of Sociology and Anthropology, University of Nigeria, Nsukka 41001, Enugu, Nigeria
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The influence of socio-demographics and clinical characteristics on coping strategies in cancer patients: a systematic review. Support Care Cancer 2022; 30:8785-8803. [PMID: 35804175 DOI: 10.1007/s00520-022-07267-0] [Citation(s) in RCA: 15] [Impact Index Per Article: 5.0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 01/11/2022] [Accepted: 06/27/2022] [Indexed: 10/17/2022]
Abstract
OBJECTIVES Cancer is a frequent illness and a traumatic experience for both patients and their families. This systematic review aims to analyse studies that examine socio-demographic and clinical characteristics that predict the coping strategies in cancer patients. METHODS From January 2000 to March 2021, the database searches were conducted in 7 different databases, using relevant keywords. According to PRISMA Statements, full-text, peer-reviewed articles in English which used socio-demographics as independent variables and coping as dependent variables were included. RESULTS Of 1101 abstracts and titles, 30 full-text papers were included. Overall results showed a great influence of socio-demographic characteristics (such as women, younger, in a relationship, with high educational level, with active work status, and high income) on positive coping strategies adopted by cancer patients. Regarding clinical characteristics, no-metastatic patients who have recently been diagnosed, especially in the early stage of cancer, and who know the characteristics of their illness and treatments, more frequently used adaptive coping strategies. CONCLUSIONS Both socio-demographics and clinical characteristics showed considerable influence on the coping strategies adopted by patients in most of the investigations. These results supported the assessment of basic patients' information (sociodemographic and clinical characteristics) as fundamental to quickly outline an efficient, supportive, and holistic taking-over, before all the essential and in-depth considerations. TRIAL REGISTRATION This systematic review was recorded in PROSPERO with the registration number: CRD42021254776.
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Mazhari F, Rayyani M, Iranmanesh S, Heidari S, Sabzevari S. Power of Religious Beliefs and Coping with Cancer: Opinions of Iranian Parents. JOURNAL OF RELIGION AND HEALTH 2021; 60:2878-2891. [PMID: 31820276 DOI: 10.1007/s10943-019-00959-8] [Citation(s) in RCA: 6] [Impact Index Per Article: 1.5] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Subscribe] [Scholar Register] [Indexed: 06/10/2023]
Abstract
Childhood cancer as a stressful event has many consequences for both the parents and their children. The aim of the study was to assess the coping strategies used by Iranian parents of children with cancer. The present study was conducted through convenience sampling with the participation of 205 parents with at least one child with cancer referred to the oncology ward, in the southeast of Iran. The Coping Health Inventory for Parents was used to measure parental coping strategies. Results showed that the highest and the lowest mean coping score belonged to the dimensions of social support and medical factors, respectively. Briefly, "Belief in God" and "Gratefulness for his Blessings" were the most helpful coping strategies among parents. Based on results of this study, it seems necessary for nurses to be aware of all aspects of human existence, including religion and spirituality as strong sources of power for parents to adapt with the illness of their child. Also, providing interventions to teach effective coping skills to parents may reduce their distress and improve their quality of life.
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Affiliation(s)
- Fariba Mazhari
- Nursing Research Center, Razi School of Nursing and Midwifery, Kerman University of Medical Sciences, Kerman, Iran
| | - Masoud Rayyani
- Nursing Research Center, Razi School of Nursing and Midwifery, Kerman University of Medical Sciences, Kerman, Iran.
| | - Sedigheh Iranmanesh
- Nursing Research Center, Razi School of Nursing and Midwifery, Kerman University of Medical Sciences, Kerman, Iran
| | - Shahin Heidari
- Department of Fundamental Nursing, Geriatric Care Research Center, Faculty of Nursing and Midwifery, Rafsanjan University of Medical Sciences, Rafsanjan, Iran
| | - Sakineh Sabzevari
- Nursing Research Center, Razi School of Nursing and Midwifery, Kerman University of Medical Sciences, Kerman, Iran
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Highland B, Worthington EL, Davis DE, Sibley CG, Bulbulia JA. National longitudinal evidence for growth in subjective well-being from spiritual beliefs. J Health Psychol 2021; 27:1738-1752. [PMID: 33855887 DOI: 10.1177/13591053211009280] [Citation(s) in RCA: 4] [Impact Index Per Article: 1.0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 01/07/2023] Open
Abstract
Previous research finds an association between spirituality and subjective well-being. However, the widespread use of poorly defined concepts of spirituality, tautological spirituality scales, and heavy reliance on cross-sectional samples cast doubts on prior findings. Here, we leverage ten waves of panel data from a nationally diverse longitudinal study to systematically test whether having spiritual beliefs leads to growth in personal well-being and life satisfaction (N = 3257, New Zealand, 2010-2020). Contrary to previous research, we find that belief in a spirit or life force predicts lower personal well-being and life satisfaction. However, in support of previous speculation, belief (relative to disbelief) in a spirit or life force predicts increasing personal well-being and life satisfaction over time. These findings are robust even while accounting for known demographic influences; they even hold among those who believe in a God but disbelieve in a spirit or life force. The recent growth in spiritual beliefs and decline in traditional religion across many industrial societies motivates further causal investigations of the mechanisms by which spiritual beliefs lead to growth in subjective well-being.
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Affiliation(s)
| | | | - Don E Davis
- Department of Psychology, Georgia State University, Atlanta, GA, USA
| | - Chris G Sibley
- School of Psychology, University of Auckland, Auckland, New Zealand
| | - Joseph A Bulbulia
- School of Psychology, Victoria University of Wellington, Wellington, New Zealand
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Nardone V, Reginelli A, Vinciguerra C, Correale P, Calvanese MG, Falivene S, Sangiovanni A, Grassi R, Di Biase A, Polifrone MA, Caraglia M, Cappabianca S, Guida C. Mood Disorder in Cancer Patients Undergoing Radiotherapy During the COVID-19 Outbreak. Front Psychol 2021; 12:568839. [PMID: 33815186 PMCID: PMC8017226 DOI: 10.3389/fpsyg.2021.568839] [Citation(s) in RCA: 4] [Impact Index Per Article: 1.0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Download PDF] [Figures] [Journal Information] [Subscribe] [Scholar Register] [Received: 06/02/2020] [Accepted: 02/25/2021] [Indexed: 12/26/2022] Open
Abstract
Introduction: Novel coronavirus (COVID-19) is having a devastating psychological impact on patients, especially patients with cancer. This work aims to evaluate mood disorders of cancer patients undergoing radiation therapy during COVID-19 in comparison with cancer patients who underwent radiation therapy in 2019. Materials and Methods: We included all the patients undergoing radiation therapy at our department in two-time points (once a week for a month in May 2019) and during the COVID-19 outbreak (in April 2020). All the patients were asked to fulfill a validated questionnaire (STAI-Y1, State trait anxiety inventory scale), the Symptom Distress thermometer (SDT) (from 0 to 10 score), and the Beck Depression Inventory v.2 (BDI-2). We took into account the COVID-19 outbreak and also sex, age, week of radiation treatment, and disease. Results: We included 458 patients (220 males and 238 females), with a median age of 64 years. STAI-Y1 median score was 40 (mean 41,3, range 19-79), whereas the median score of SDT was five and BDI-2 median score was 11. STAI-Y1, SDT, and BDI-2 were significantly correlated with the COVID-19 outbreak (p < 0,001 for all the tests), sex (p: 0,016 for STAI-Y1, p < 0.001 for SDT, p:0.013 for BDI-2), week of treatment (p: 0.012 for STAI-Y1 and p: 0.031 for SDT), and disease (p:0.015 for STAI-Y1, p < 0.001 for SDT and p:0.020 for BDI-2). Conclusions: The prevalence of mood disorders in patients undergoing radiation therapy is higher than expected and even higher during the COVID-19 outbreak. These measurements could be useful as a baseline to start medical humanities programs to decrease these scores.
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Affiliation(s)
- Valerio Nardone
- Unit of Radiation Oncology, Ospedale del Mare, Naples, Italy
| | - Alfonso Reginelli
- Department of Precision Medicine, University of Campania “Luigi Vanvitelli,” Naples, Italy
| | | | - Pierpaolo Correale
- Unit of Medical Oncology, Grand Metropolitan Hospital “Bianchi Melacrino Morelli,” Reggio Calabria, Italy
| | | | - Sara Falivene
- Unit of Radiation Oncology, Ospedale del Mare, Naples, Italy
| | - Angelo Sangiovanni
- Department of Precision Medicine, University of Campania “Luigi Vanvitelli,” Naples, Italy
| | - Roberta Grassi
- Department of Precision Medicine, University of Campania “Luigi Vanvitelli,” Naples, Italy
| | - Angela Di Biase
- Unit of Radiation Oncology, Ospedale del Mare, Naples, Italy
| | - Maria Angela Polifrone
- Unit of Medical Oncology, Grand Metropolitan Hospital “Bianchi Melacrino Morelli,” Reggio Calabria, Italy
| | - Michele Caraglia
- Department of Precision Medicine, University of Campania “Luigi Vanvitelli,” Naples, Italy
| | - Salvatore Cappabianca
- Department of Precision Medicine, University of Campania “Luigi Vanvitelli,” Naples, Italy
| | - Cesare Guida
- Unit of Radiation Oncology, Ospedale del Mare, Naples, Italy
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Zamanian H, Amini-Tehrani M, Jalali Z, Daryaafzoon M, Ala S, Tabrizian S, Foroozanfar S. Perceived social support, coping strategies, anxiety and depression among women with breast cancer: Evaluation of a mediation model. Eur J Oncol Nurs 2021; 50:101892. [PMID: 33583690 DOI: 10.1016/j.ejon.2020.101892] [Citation(s) in RCA: 46] [Impact Index Per Article: 11.5] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 11/04/2020] [Revised: 12/21/2020] [Accepted: 12/21/2020] [Indexed: 12/24/2022]
Abstract
PURPOSE Depression and anxiety are now considered as common adverse reactions to cancer. Prior research has shown that social support and functional coping strategies alleviate depressive and anxious symptoms of cancer patients but the exact relationship between social support and coping strategies in amelioration of the symptoms is yet to be elaborated. METHODS The current study examined the relationship between social support, coping strategies and depressive-anxious symptomatology and explored the possible role of coping strategies in mediating the relationship between social support, depression and anxiety in Iranian breast cancer patients (N = 221). Anxiety and depressive symptoms were measured using the Depression-Anxiety-Stress (DASS-21) scale, social support was measured using the Medical Outcome Survey, Social Support Scale (MOSS-SSS), and coping strategies were measured using the brief COPE. RESULTS All of the social support subscales were negatively correlated with depression and anxiety. Most of the coping strategies were negatively correlated with depressive-anxious symptoms. When controlling for covariates, mediation analysis revealed that active coping, positive reframing and acceptance partially mediated the association of social support of different types with depression. Positive reframing also partially mediated the relationship of the total social support and positive social interactions with anxiety. CONCLUSIONS High levels of social support may relieve depressive and anxious symptoms of breast cancer patients through functional coping. The management of breast cancer patients should also focus on providing patients with social support and educating them on the practice of functional coping strategies.
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Affiliation(s)
- Hadi Zamanian
- Department of Health Education and Promotion, School of Health, Qom University of Medical Sciences, Qom, Iran; Health Psychology and Behavior Medicine Research Group, Students' Scientific Research center, Exceptional Talents Development Center, Tehran University of Medical Sciences, Tehran, Iran.
| | - Mohammadali Amini-Tehrani
- Department of Psychology, Faculty of Psychology and Education, University of Tehran, Tehran, Iran; Students' Scientific Research center, Exceptional Talents Development Center, Tehran University of Medical Sciences, Tehran, Iran.
| | - Zahra Jalali
- Connective Tissue Diseases Research Center, Tabriz University of Medical Sciences, Tabriz, Iran.
| | - Mona Daryaafzoon
- Department of Health Psychology, Karaj Branch, Islamic Azad University, Alborz, Iran.
| | - Sara Ala
- Students' Scientific Research center, Exceptional Talents Development Center, Tehran University of Medical Sciences, Tehran, Iran.
| | - Samira Tabrizian
- Students' Scientific Research center, Exceptional Talents Development Center, Tehran University of Medical Sciences, Tehran, Iran.
| | - Sahar Foroozanfar
- Department of Clinical Psychology, Karaj Branch, Islamic Azad University, Alborz, Iran.
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Kumar J, Alam MM, Johnson KC. Nonpharmacological Interventions for Pain Management in Lung Cancer Patients: A Systematic Review. Indian J Palliat Care 2020; 26:444-456. [PMID: 33623305 PMCID: PMC7888434 DOI: 10.4103/ijpc.ijpc_24_20] [Citation(s) in RCA: 1] [Impact Index Per Article: 0.2] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Figures] [Journal Information] [Subscribe] [Scholar Register] [Received: 02/06/2020] [Accepted: 03/25/2020] [Indexed: 11/18/2022] Open
Abstract
Background: The presence of lung cancer is almost always associated with pain, a symptom that causes severe distress in patients. Although many pharmacological methods are available to manage pain in this oncologic population, the medications often cause undesirable sideeffects and inadequate relief. Nonpharmacological interventions can be used as adjuvants to pharmacological interventions in reducing pain and increasing quality of life. Objectives: The purpose of this review is to compare the efficacy of nonpharmacological interventions in reducing pain in lung cancer patients. Materials and Methods: This is a systematic review study guided by the Preferred Reporting Items of Systematic reviews and Meta-Analysis Protocol. Interventions identified in the present systematic review have been categorized as physical treatment, technologybased, cognitive behavioral, coping, and coaching. Results: Results indicate that the nonpharmacological interventions such as physical treatment interventions, selfmanagement and coaching interventions, cognitive behavioral interventions, and technologybased interventions or coping skills interventions had limited and shortterm effects on alleviating pain among the patients. However, previous studies have provided limited evidence regarding nonpharmacologic therapy due to the lack of a comparison group, small sample sizes, and lack of longterm followup periods to determine whether sustained effects are feasible. Conclusion: Healthcare professionals should consider additional research on the added advantage of utilizing the nonpharmacological interventions as an adjunct option while managing pain in lung cancer patients.
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Affiliation(s)
- Jayaprakash Kumar
- Department of Preventive Medicine, University of Tennessee Health Science Center, Memphis, TN 38163, USA
| | - Mohammad Masudul Alam
- Department of Health Behavior and Health Education, Fay W. Boozman College of Public Health, University of Arkansas for Medical Sciences, Little Rock, Arkansas 72205, USA
| | - Karen Chandler Johnson
- Department of Preventive Medicine, University of Tennessee Health Science Center, Memphis, TN 38163, USA
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Nardone V, Vinciguerra C, Correale P, Guida C, Tini P, Reginelli A, Cappabianca S. Music therapy and radiation oncology: State of art and future directions. Complement Ther Clin Pract 2020; 39:101124. [DOI: 10.1016/j.ctcp.2020.101124] [Citation(s) in RCA: 6] [Impact Index Per Article: 1.2] [Reference Citation Analysis] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 12/12/2019] [Revised: 02/11/2020] [Accepted: 02/22/2020] [Indexed: 10/24/2022]
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Sira N, Lamson A, Foster CL. Relational and Spiritual Coping Among Emerging and Young Adult Cancer Survivors. J Holist Nurs 2019; 38:52-67. [PMID: 31535901 DOI: 10.1177/0898010119874983] [Citation(s) in RCA: 5] [Impact Index Per Article: 0.8] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 11/15/2022]
Abstract
Cancer presents uncertainties for individuals of any age; however, emerging and young adults (EYA) are challenged to cope with developmental tasks in addition to cancer-related stressors. Guided by the double ABC-X model and biopsychosocial-spiritual framework, the current study investigates coping strategies used by this population and the role of psychological resources (perception of parental care/control and spirituality) on their coping ability. Recruited from online social media, 210 EYA cancer survivors self-reported demographic, medical information, and completed the Brief Cope scale. In addition, spirituality reliance, perceived parental care, and parental control were measured and examined in relation to coping ability. While nearly half of participants experienced positive adaptation in relation to multiple stressors, hierarchical multiple regression revealed the developmental nature of coping and indicated that higher spirituality reliance and higher degree of parental care were predictive of adaptive coping among EYA cancer survivors. Content analyses of the open-ended questions confirmed these results. In order to facilitate adaptive coping, attention must be paid to the unique biopsychosocial-spiritual and developmental needs of young cancer survivors while encouraging family support and spirituality reliance as significant tools in coping. Practical recommendations for nursing support and healthcare teams are discussed.
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Gauging the Effects of Self-efficacy, Social Support, and Coping Style on Self-management Behaviors in Chinese Cancer Survivors. Cancer Nurs 2019; 41:E1-E10. [PMID: 29461285 DOI: 10.1097/ncc.0000000000000571] [Citation(s) in RCA: 41] [Impact Index Per Article: 6.8] [Reference Citation Analysis] [Abstract] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 12/22/2022]
Abstract
BACKGROUND Better self-management control in cancer survivors would benefit their functional status, quality of life, and health service utilization. Factors such as self-efficacy, social support, and coping style are important predictors of self-management behaviors of cancer survivors; however, the impact of these factors on self-management behaviors has not yet been empirically tested in Chinese cancer survivors. OBJECTIVES The aim of this study was to examine how self-efficacy, social support, and coping style affect specific self-management behaviors. METHODS A secondary data analysis was completed from a cross-sectional study. A total of 764 cancer survivors were recruited in the study. Validated instruments were used to assess patients' self-efficacy, social support, and coping style. Structural equation modeling (SEM) was used to test the hypothesis. RESULTS The SEM model fits the data very well, with root mean square error of approximation (RMSEA) of 0.034; close-fit test cannot reject the hypothesis of root mean square error of approximation of 0.05 or less, comparative fit index of 0.91, Tucker-Lewis index of 0.90, and weighted root mean square residual of 0.82. For the measurement models in the SEM, all items loaded highly on their underlying first-order factors, and the first-order factors loaded highly on their underlying second-order factors (self-efficacy and social support, respectively). The model demonstrated that self-efficacy and social support directly and indirectly, via coping style, affect 3 self-management behaviors (ie, communication, exercise, and information seeking). CONCLUSION Our results provide evidence that self-efficacy and social support impose significant direct effects, as well as indirect effects via copying style, on the self-management of cancer survivors. IMPLICATIONS FOR PRACTICE Our findings may help nurses to further improve their care of cancer survivors in terms of their self-management behaviors, specifically communication, exercise, and information seeking.
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Gramaglia C, Gambaro E, Vecchi C, Licandro D, Raina G, Pisani C, Burgio V, Farruggio S, Rolla R, Deantonio L, Grossini E, Krengli M, Zeppegno P. Outcomes of music therapy interventions in cancer patients-A review of the literature. Crit Rev Oncol Hematol 2019; 138:241-254. [PMID: 31121392 DOI: 10.1016/j.critrevonc.2019.04.004] [Citation(s) in RCA: 55] [Impact Index Per Article: 9.2] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 11/17/2018] [Revised: 04/01/2019] [Accepted: 04/02/2019] [Indexed: 11/27/2022] Open
Abstract
BACKGROUND Effectiveness of music-based interventions (MI) on cancer patients' anxiety, depression, pain and quality of life (QoL) is a current research theme. MI are highly variable, making it challenging to compare studies. OBJECTIVE AND METHODS To summarize the evidence on MI in cancer patients, 40 studies were reviewed following the PRISMA statement. Studies were included if assessing at least one outcome among anxiety, depression, QoL and pain in patients aged ≥ 18, with an active oncological/onco-haematological diagnosis, participating to any kind of Music Therapy (MT), during/after surgery, chemotherapy or radiotherapy. RESULTS A positive effect of MI on the outcomes measured was supported. Greater reductions of anxiety and depression were observed in breast cancer patients. MI involving patients admitted to a hospital ward were less effective on QoL. CONCLUSION The increasing evidence about MI effectiveness, tolerability, feasibility and appreciation, supports the need of MI implementation in Oncology, Radiotherapy and Surgery wards, and promotion of knowledge among health operators.
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Affiliation(s)
- Carla Gramaglia
- Psychiatry Institute, Department of Translational Medicine, Università del Piemonte Orientale, Via Solaroli 17, 28100, Novara, Italy; Psychiatry Ward, Azienda Ospedaliera Universitaria Maggiore della Carità, Corso Mazzini 18, Novara, Via Solaroli 17, Italy.
| | - Eleonora Gambaro
- Psychiatry Institute, Department of Translational Medicine, Università del Piemonte Orientale, Via Solaroli 17, 28100, Novara, Italy
| | - Camilla Vecchi
- Psychiatry Institute, Department of Translational Medicine, Università del Piemonte Orientale, Via Solaroli 17, 28100, Novara, Italy
| | - Davide Licandro
- School of Medicine, Università del Piemonte Orientale, Via Solaroli 17, 28100, Novara, Italy
| | - Giulia Raina
- Laboratory of Physiology and Experimental Surgery, Department of Translational Medicine, Università del Piemonte Orientale, Via Solaroli 17, 28100, Novara, Italy
| | - Carla Pisani
- Radiotherapy Unit, Azienda Ospedaliera Universitaria Maggiore della Carità, Corso Mazzini 18, 28100, Novara, Italy
| | - Vincenzo Burgio
- Radiotherapy Unit, Department of Translational Medicine, Università del Piemonte Orientale, Via Solaroli 17, 28100, Novara, Italy
| | - Serena Farruggio
- Laboratory of Physiology and Experimental Surgery, Department of Translational Medicine, Università del Piemonte Orientale, Via Solaroli 17, 28100, Novara, Italy
| | - Roberta Rolla
- Clinical Chemistry Unit, Azienda Ospedaliero Universitaria Maggiore della Carità, Corso Mazzini 18, 28100, Novara, Italy; Department of Health Sciences, Università del Piemonte Orientale, Via Solaroli 17, 28100, Novara, Italy
| | - Letizia Deantonio
- Radiotherapy Unit, Department of Translational Medicine, Università del Piemonte Orientale, Via Solaroli 17, 28100, Novara, Italy; Radiotherapy Unit, Azienda Ospedaliera Universitaria Maggiore della Carità, Corso Mazzini 18, 28100, Novara, Italy
| | - Elena Grossini
- Laboratory of Physiology and Experimental Surgery, Department of Translational Medicine, Università del Piemonte Orientale, Via Solaroli 17, 28100, Novara, Italy
| | - Marco Krengli
- Radiotherapy Unit, Department of Translational Medicine, Università del Piemonte Orientale, Via Solaroli 17, 28100, Novara, Italy; Radiotherapy Unit, Azienda Ospedaliera Universitaria Maggiore della Carità, Corso Mazzini 18, 28100, Novara, Italy
| | - Patrizia Zeppegno
- Psychiatry Institute, Department of Translational Medicine, Università del Piemonte Orientale, Via Solaroli 17, 28100, Novara, Italy; Psychiatry Ward, Azienda Ospedaliera Universitaria Maggiore della Carità, Corso Mazzini 18, Novara, Via Solaroli 17, Italy
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Rudaz M, Ledermann T, Grzywacz JG. Spiritual coping, perceived growth, and the moderating role of spiritual mindfulness in cancer survivors. J Psychosoc Oncol 2018; 36:609-623. [PMID: 29869950 DOI: 10.1080/07347332.2018.1464091] [Citation(s) in RCA: 4] [Impact Index Per Article: 0.6] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 10/14/2022]
Abstract
PURPOSE This study examined the moderating role of spiritual mindfulness on the association between spiritual coping and perceived growth in individuals with and without current treatment for cancer. DESIGN/SAMPLE Adults with a cancer history (N = 534) from the Midlife in the United States study completed a telephone interview and self-administered questionnaires. METHODS/FINDINGS Moderated regression analyses, controlled for age and educational attainment, showed that mindfulness moderated the effect of spiritual coping on personal growth and on positive reinterpretation. High mindfulness amplified the effect of spiritual coping on both personal growth and positive reinterpretation. Further, this moderating effect was significantly different for adults with versus without current treatment for cancer for positive reinterpretation but not for personal growth. CONCLUSIONS/IMPLICATIONS These findings highlight the potential amplifying effect of spiritual mindfulness on the effect of spiritual coping on perceived growth in cancer survivors.
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Affiliation(s)
- Myriam Rudaz
- a Department of Family and Child Sciences , Florida State University , Tallahassee , Florida , USA
| | - Thomas Ledermann
- a Department of Family and Child Sciences , Florida State University , Tallahassee , Florida , USA
| | - Joseph G Grzywacz
- a Department of Family and Child Sciences , Florida State University , Tallahassee , Florida , USA
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Postolică R, Enea V, Dafinoiu I, Petrov I, Azoicăi D. Association of sense of coherence and supernatural beliefs with death anxiety and death depression among Romanian cancer patients. DEATH STUDIES 2018; 43:9-19. [PMID: 29393825 DOI: 10.1080/07481187.2018.1430083] [Citation(s) in RCA: 11] [Impact Index Per Article: 1.6] [Reference Citation Analysis] [Abstract] [MESH Headings] [Track Full Text] [Subscribe] [Scholar Register] [Indexed: 06/07/2023]
Abstract
The aim of this cross-sectional study was to examine the association of supernatural beliefs and sense of coherence with death anxiety and death depression in a Romanian sample of cancer patients. We found support for the terror management theory worldview defence hypothesis postulating the presence of a curvilinear relation between death anxiety and supernatural beliefs among cancer patients. Results conformed to an inverted U-shape quadratic regression, indicating that cancer patients who scored moderately on supernatural beliefs were afraid of death the most, while death anxiety was lowest for the extreme atheists and extreme believers in supernatural entities.
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Affiliation(s)
- Roxana Postolică
- a Regional Institute of Oncology , Iasi , Romania
- b Faculty of Medicine, Department of Oncogenetics , "Grigore T. Popa" University of Medicine and Pharmacy of Iasi , Iasi , Romania
| | - Violeta Enea
- c Faculty of Psychology and Education Sciences, Department of Psychology , "Alexandru Ioan Cuza" University of Iasi , Iasi , Romania
| | - Ion Dafinoiu
- c Faculty of Psychology and Education Sciences, Department of Psychology , "Alexandru Ioan Cuza" University of Iasi , Iasi , Romania
| | - Iuliana Petrov
- c Faculty of Psychology and Education Sciences, Department of Psychology , "Alexandru Ioan Cuza" University of Iasi , Iasi , Romania
| | - Doina Azoicăi
- b Faculty of Medicine, Department of Oncogenetics , "Grigore T. Popa" University of Medicine and Pharmacy of Iasi , Iasi , Romania
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Hefner J, Csef EJ, Kunzmann V. Adherence and Coping Strategies in Outpatients With Chronic Myeloid Leukemia Receiving Oral Tyrosine Kinase Inhibitors. Oncol Nurs Forum 2017; 44:E232-E240. [PMID: 29052661 DOI: 10.1188/17.onf.e232-e240] [Citation(s) in RCA: 2] [Impact Index Per Article: 0.3] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 11/17/2022]
Abstract
PURPOSE/OBJECTIVES To assess adherence and coping strategies in outpatients with chronic myeloid leukemia (CML) on oral tyrosine kinase inhibitors (TKIs).
. DESIGN Prospective, descriptive.
. SETTING An interdisciplinary oncology outpatient clinic in Germany.
. SAMPLE 35 outpatients with CML on oral TKIs.
. METHODS Adherence and coping strategies were assessed with questionnaires. Clinical data were extracted from medical charts.
. MAIN RESEARCH VARIABLES Adherence rates, main coping strategies, and frequency and contents of single coping strategies.
. FINDINGS 18 patients showed adherence according to the applied screening instrument. Main coping strategies were spirituality and search for meaning. The two single items most frequently specified were adhering to medical instructions and trusting in the medical personnel involved.
. CONCLUSIONS The low adherence rate of 51% most likely resulted from using the Basel Assessment of Adherence Scale as the questionnaire of choice. The relevance of spirituality and search for meaning as main coping strategies has not been shown previously in outpatients with CML. Most patients wish to obey medical instructions accurately and put trust in their oncologists; this introduces a resource that should gain relevance considering the increasing number of oral anticancer drugs.
. IMPLICATIONS FOR NURSING Nurses are encouraged to routinely assess adherence and spiritual needs in outpatients with CML. Spirituality and search for meaning represent pivotal coping strategies in this group, which has an excellent prognosis. Oncology nurses may help provide tailored support, thereby ameliorating care for these patients.
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Téllez A, Rodríguez-Padilla C, Martínez-Rodríguez JL, Juárez-García DM, Sanchez-Armass O, Sánchez T, Segura G, Jaime-Bernal L. Psychological Effects of Group Hypnotherapy on Breast Cancer Patients During Chemotherapy. AMERICAN JOURNAL OF CLINICAL HYPNOSIS 2017; 60:68-84. [PMID: 28557680 DOI: 10.1080/00029157.2016.1210497] [Citation(s) in RCA: 7] [Impact Index Per Article: 0.9] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 12/20/2022]
Abstract
The purpose of this study was to evaluate the effect of group hypnotherapy on anxiety, depression, stress, self-esteem, optimism, and social support during chemotherapy, in patients with breast cancer, compared with a control group with standard medical care. Hypnotherapy consisted of 24 sessions that included suggestions to encourage relaxation, self-esteem, the resolution of past traumatic events, physical healing, and optimism. Results show that the hypnotherapy group significantly decreased anxiety, distress, increased self-esteem, and optimism in the first 12 sessions. However, at the end of the 24 sessions, only self-esteem and optimism remained significant compared with the control group. The convenience of using hypnotherapy to encourage optimism and self-esteem in patients with breast cancer during chemotherapy treatment is discussed given its protective effect on health.
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Affiliation(s)
- Arnoldo Téllez
- Universidad Autónoma de Nuevo León, San Nicolás de los Garza, Mexico
| | | | | | | | | | - Teresa Sánchez
- Universidad Autónoma de Nuevo León, San Nicolás de los Garza, Mexico
| | - Guillermo Segura
- Universidad Autónoma de Nuevo León, San Nicolás de los Garza, Mexico
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Abstract
ABSTRACTObjective:The present study intended to evaluate the impact of a standardized format-called the "Music Givers," based on a single session of music intervention followed by a buffet-on the psychological burden and well-being of hospitalized cancer patients. METHOD The Distress Thermometer (DT), the Hospital Anxiety and Depression Scale (HADS), and self-reported visual analogue scales (score range = 1-10) to assess pain, fatigue, and five areas of well-being (i.e., physical, psychological, relational, spiritual, and overall well-being) were administered to 242 cancer patients upon admission to and at discharge from the hospital. Among them, 103 were hospitalized during which time a live concert took place (intervention group), whereas 139 patients were hospitalized when it did not (control group). RESULTS Compared to the control group, patients in the intervention group demonstrated less distress at discharge according to the DT (adjusted estimate of difference = -0.8, p = 0.001), lower HADS-Anxiety (-1.7, p < 0.001) and HADS-Depression scores (-1.3, p = 0.001), and higher scores on all the well-being scales, with the exception of spiritual well-being. In addition, no between-group differences were found in terms of pain and fatigue scores at discharge. SIGNIFICANCE OF RESULTS The one-session format of the Music Givers intervention is an effective, standardized, easy-to-replicate, and low-cost intervention that reduces psychological burden and improves the well-being of hospitalized cancer patients. Listening to live music and the opportunity to establish better relationships between patients and staff could explain these results.
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O'Callaghan CC, McDermott F, Reid P, Michael N, Hudson P, Zalcberg JR, Edwards J. Music's Relevance for People Affected by Cancer: A Meta-Ethnography and Implications for Music Therapists. J Music Ther 2016; 53:398-429. [PMID: 27980035 DOI: 10.1093/jmt/thw013] [Citation(s) in RCA: 17] [Impact Index Per Article: 1.9] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 11/12/2022]
Abstract
BACKGROUND Evidence supports music-based oncologic support interventions including music therapy. By comparison, little is understood about music-based self-care. This meta-ethnography examined five published qualitative studies to extend understanding of music's relevance, including helpfulness, for people affected by cancer; including children, adolescents, and adults with cancer, carers, and the bereaved. OBJECTIVE To improve understanding of music's broad relevance for those affected by cancer. METHODS Meta-ethnography strategies informed the analysis. Five studies were synthesized that included 138 participants: 26 children and 28 parents of children with cancer; 12 adolescents and young adults with cancer; 52 adults with cancer; 12 carers; and 8 bereaved. Studies' category and thematic findings were compared and integrated into third-order interpretations, and a line of argument. Perspectives from the five studies that illuminated the line of argument were developed. RESULTS Music usage can remain incidental, continue normally, and/or change because of cancer's harsh effects. Music can be a lifeline, support biopsychosocial and spiritual well-being, or become elusive, that is, difficult to experience. Music helps or intrudes because it extends self-awareness and social connections, and prompts play, memories, imageries, and legacies. Music therapists may help patients and carers to recover or extend music's helpful effects. CONCLUSIONS Cancer care can be improved through offering music-based resources/services, which give cancer patients and carers opportunities to extend music usage for personal support and, for carers, to support patients. Music therapists can advocate for such resources and educate health professionals about assessing/recognizing when patients' and carers' changed music behaviors signify additional support needs.
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Affiliation(s)
- Clare C O'Callaghan
- Caritas Christi Hospice and Department of Medicine, St Vincent's Hospital, The University of Melbourne and Cabrini Health, Melbourne
- Monash University
- Department of Education and Training, Melbourne
- Notre Dame University, Sydney, and Monash University, Melbourne
- Centre for Palliative Care Education and Research, St Vincent's & University of Melbourne, and Queens University, Belfast
- Monash University
- Deakin University
| | - Fiona McDermott
- Caritas Christi Hospice and Department of Medicine, St Vincent's Hospital, The University of Melbourne and Cabrini Health, Melbourne
- Monash University
- Department of Education and Training, Melbourne
- Notre Dame University, Sydney, and Monash University, Melbourne
- Centre for Palliative Care Education and Research, St Vincent's & University of Melbourne, and Queens University, Belfast
- Monash University
- Deakin University
| | - Philippa Reid
- Caritas Christi Hospice and Department of Medicine, St Vincent's Hospital, The University of Melbourne and Cabrini Health, Melbourne
- Monash University
- Department of Education and Training, Melbourne
- Notre Dame University, Sydney, and Monash University, Melbourne
- Centre for Palliative Care Education and Research, St Vincent's & University of Melbourne, and Queens University, Belfast
- Monash University
- Deakin University
| | - Natasha Michael
- Caritas Christi Hospice and Department of Medicine, St Vincent's Hospital, The University of Melbourne and Cabrini Health, Melbourne
- Monash University
- Department of Education and Training, Melbourne
- Notre Dame University, Sydney, and Monash University, Melbourne
- Centre for Palliative Care Education and Research, St Vincent's & University of Melbourne, and Queens University, Belfast
- Monash University
- Deakin University
| | - Peter Hudson
- Caritas Christi Hospice and Department of Medicine, St Vincent's Hospital, The University of Melbourne and Cabrini Health, Melbourne
- Monash University
- Department of Education and Training, Melbourne
- Notre Dame University, Sydney, and Monash University, Melbourne
- Centre for Palliative Care Education and Research, St Vincent's & University of Melbourne, and Queens University, Belfast
- Monash University
- Deakin University
| | - John R Zalcberg
- Caritas Christi Hospice and Department of Medicine, St Vincent's Hospital, The University of Melbourne and Cabrini Health, Melbourne
- Monash University
- Department of Education and Training, Melbourne
- Notre Dame University, Sydney, and Monash University, Melbourne
- Centre for Palliative Care Education and Research, St Vincent's & University of Melbourne, and Queens University, Belfast
- Monash University
- Deakin University
| | - Jane Edwards
- Caritas Christi Hospice and Department of Medicine, St Vincent's Hospital, The University of Melbourne and Cabrini Health, Melbourne
- Monash University
- Department of Education and Training, Melbourne
- Notre Dame University, Sydney, and Monash University, Melbourne
- Centre for Palliative Care Education and Research, St Vincent's & University of Melbourne, and Queens University, Belfast
- Monash University
- Deakin University
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Sinclair S, Booker R, Fung T, Raffin-Bouchal S, Enns B, Beamer K, Ager N. Factors Associated With Post-Traumatic Growth, Quality of Life, and Spiritual Well-Being in Outpatients Undergoing Bone Marrow Transplantation: A Pilot Study. Oncol Nurs Forum 2016; 43:772-780. [PMID: 27768141 DOI: 10.1188/16.onf.772-780] [Citation(s) in RCA: 8] [Impact Index Per Article: 0.9] [Reference Citation Analysis] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 11/17/2022]
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Thomas R, Hamilton R. Composing hope through collage: A community-based intervention for cancer survivors living with lymphedema. Health Psychol Open 2016; 3:2055102916657674. [PMID: 35223070 PMCID: PMC8867492 DOI: 10.1177/2055102916657674] [Citation(s) in RCA: 2] [Impact Index Per Article: 0.2] [Reference Citation Analysis] [Abstract] [Track Full Text] [Download PDF] [Figures] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 11/15/2022] Open
Abstract
Secondary lymphedema after cancer may result in distress, yet few interventions exist to support coping skills in this population. As part of a community-based intervention, we piloted the use of creative practices to promote active orientations to hope. A total of 19 participants completed the workshops; 11 collaged. The main themes address the collage processes as well as their content. The former addresses sub-themes such as selecting/composing. The latter includes sub-themes related to movement depicted in the collages. Collages and their associated discussions concretized hoping as an active and accessible process for participants living with two chronic illnesses.
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22
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Archana R, Mukilan R. Beneficial Effect of Preferential Music on Exercise Induced Changes in Heart Rate Variability. J Clin Diagn Res 2016; 10:CC09-11. [PMID: 27437208 DOI: 10.7860/jcdr/2016/18320.7740] [Citation(s) in RCA: 11] [Impact Index Per Article: 1.2] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 12/13/2015] [Accepted: 03/15/2016] [Indexed: 02/02/2023]
Abstract
INTRODUCTION Music is known to reduce pain, anxiety and fear in several stressful conditions in both males and females. Further, listening to preferred music enhances the endurance during running performance of women rather than listening to non-preferred music. In recent years Heart Rate Variability (HRV) has been used as an indicator of autonomic nervous activity. AIM This study was aimed to assess the effectiveness of preferential music on HRV after moderate exercise. MATERIALS AND METHODS This was an experimental study done in 30 healthy students aged between 20-25 years, of either sex. HRV was measured at rest, 15 minutes of exercise only and 15 minutes of exercise with listening preferential music in same participants. Data was analysed by One-Way ANOVA and Tukey HSD Post-hoc Test. Statistical significance was taken to be a p-value of less than 0.05. RESULTS Low frequency and high frequency component was significantly increased followed by only exercise. Music minimized increase in both high and low frequency component followed by exercise. However, only high frequency change was statistically significant. LF/HF ratio was significantly increased followed by only exercise. Music significantly minimized increase in LF/HF ratio. CONCLUSION This study provides the preliminary evidence that listening to preferential music could be an effective method of relaxation, as indicated by a shift of the autonomic balance towards the parasympathetic activity among medical students.
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Affiliation(s)
- R Archana
- Professor, Department of Physiology, Saveetha Medical College , Chennai, Tamil Nadu, India
| | - R Mukilan
- Senior Lecturer, Department of Physiology, CSI College of Dental Sciences and Research , Madurai, Tamil Nadu, India
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23
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Mandizadza EJR, Chidarikire S. A Phenomenological Study into the Role of Spirituality and Religiousness in the Mental Health of People with Cancer in Zimbabwe. JOURNAL OF SPIRITUALITY IN MENTAL HEALTH 2016. [DOI: 10.1080/19349637.2015.1100972] [Citation(s) in RCA: 1] [Impact Index Per Article: 0.1] [Reference Citation Analysis] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 01/07/2023]
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Gangler A, Lesur A, Dalenc F. PPAC (programme personnalisé de l’après-cancer) : rationnel et mise en place. ONCOLOGIE 2016. [DOI: 10.1007/s10269-016-2595-7] [Citation(s) in RCA: 1] [Impact Index Per Article: 0.1] [Reference Citation Analysis] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 11/24/2022]
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Mclaughlin B, Yang J, Yoo W, Shaw B, Kim SY, Shah D, Gustafson D. The Effects of Expressing Religious Support Online for Breast Cancer Patients. HEALTH COMMUNICATION 2015; 31:762-771. [PMID: 26643027 DOI: 10.1080/10410236.2015.1007550] [Citation(s) in RCA: 2] [Impact Index Per Article: 0.2] [Reference Citation Analysis] [Abstract] [MESH Headings] [Track Full Text] [Subscribe] [Scholar Register] [Indexed: 06/05/2023]
Abstract
The growth of online support groups has led to an expression effects paradigm within the health communication literature. Although religious support expression is characterized as a typical subdimension of emotional support, we argue that in the context of a life-threatening illness, the inclusion of a religious component creates a unique communication process. Using data from an online group for women with breast cancer, we test a theoretical expression effects model. Results demonstrate that for breast cancer patients, religious support expression has distinct effects from general emotional support messages, which highlights the need to further theorize expression effects along these lines.
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Affiliation(s)
| | - JungHwan Yang
- b School of Journalism and Mass Communication , University of Madison-Wisconsin
| | - Woohyun Yoo
- c Survey & Health Policy Research Center , Dongguck University
| | - Bret Shaw
- d Life Sciences Communication , University of Madison-Wisconsin
| | - Soo Yun Kim
- b School of Journalism and Mass Communication , University of Madison-Wisconsin
| | - Dhavan Shah
- b School of Journalism and Mass Communication , University of Madison-Wisconsin
| | - David Gustafson
- e Department of Industrial and Systems Engineering , University of Madison-Wisconsin
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Sinclair S, McConnell S, Raffin Bouchal S, Ager N, Booker R, Enns B, Fung T. Patient and healthcare perspectives on the importance and efficacy of addressing spiritual issues within an interdisciplinary bone marrow transplant clinic: a qualitative study. BMJ Open 2015; 5:e009392. [PMID: 26614623 PMCID: PMC4663399 DOI: 10.1136/bmjopen-2015-009392] [Citation(s) in RCA: 17] [Impact Index Per Article: 1.7] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Download PDF] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Indexed: 11/04/2022] Open
Abstract
OBJECTIVES The purpose of this study was to use a qualitative approach to better understand the importance and efficacy of addressing spiritual issues within an interdisciplinary bone marrow transplant clinic from the perspectives of patients and healthcare providers. SETTING Participants were recruited from the bone marrow transplant clinic of a large urban outpatient cancer care centre in western Canada. PARTICIPANTS Focus groups were conducted with patients (n=7) and healthcare providers (n=9) to explore the importance of addressing spiritual issues across the treatment trajectory and to identify factors associated with effectively addressing these needs. RESULTS Data were analysed using the qualitative approach of latent content analysis. Addressing spiritual issues was understood by patients and healthcare providers, as a core, yet under addressed, component of comprehensive care. Both sets of participants felt that addressing basic spiritual issues was the responsibility of all members of the interdisciplinary team, while recognising the need for specialised and embedded support from a spiritual care professional. While healthcare providers felt that the impact of the illness and treatment had a negative effect on patients' spiritual well-being, patients felt the opposite. Skills, challenges, key time points and clinical indicators associated with addressing spiritual issues were identified. CONCLUSIONS Despite a number of conceptual and clinical challenges associated with addressing spiritual issues patients and their healthcare providers emphasised the importance of an integrated approach whereby basic spiritual issues are addressed by members of the interdisciplinary team and by an embedded spiritual care professional, who in addition also provides specialised support. The identification of clinical issues associated with addressing spiritual needs provides healthcare providers with clinical guidance on how to better integrate this aspect of care into their clinical practice, while also identifying acute incidences when a more targeted and specialised approach may be of benefit.
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Affiliation(s)
- Shane Sinclair
- Faculty of Nursing, University of Calgary, Calgary, Alberta, Canada
| | | | | | - Naree Ager
- Alberta Health Services, Cancer Control, Tom Baker Cancer Centre, Calgary, Alberta, Canada
| | - Reanne Booker
- Alberta Health Services, Cancer Control, Tom Baker Cancer Centre, Calgary, Alberta, Canada
| | - Bert Enns
- Alberta Health Services, Cancer Control, Tom Baker Cancer Centre, Calgary, Alberta, Canada
| | - Tak Fung
- Research Consulting Services, Information Technologies, University of Calgary, Calgary, Alberta, Canada
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Williams AR, Mowlazadeh B, Sisler L, Williams PD. Self-reported assessment of symptoms and self-care within a cohort of U.S. veterans during outpatient care for cancer. Clin J Oncol Nurs 2015; 19:595-602. [PMID: 26414577 DOI: 10.1188/15.cjon.595-602] [Citation(s) in RCA: 9] [Impact Index Per Article: 0.9] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 11/17/2022]
Abstract
BACKGROUND This study was undertaken as part of a feasibility study of the use of a symptom checklist and self-care assessment of veterans receiving oncology outpatient treatment within the U.S. Department of Veterans Affairs system. OBJECTIVES The study aimed to examine (a) symptom occurrence and severity as self-reported on the Therapy-Related Symptom Checklist (TRSC) by veterans at a cancer clinic, (b) symptom alleviation strategies and use of self-care, and (c) the relationship between symptom occurrence and severity and functional status and quality of life. METHODS Veterans (N = 100) undergoing chemotherapy and/or radiation therapy participated in a cross-sectional study. Tools used, including TRSC, Symptom Alleviation. FINDINGS Thirteen symptoms were reported by more than 35% of patients. Top-ranked symptoms by percentage occurrence and severity were feeling sluggish, taste changes, nausea, pain, constipation, loss of appetite, numbness of fingers and toes, difficulty sleeping, weight loss, hair loss, difficulty concentrating, shortness of breath, and decreased interest in sexual activity. Occurrence and severity of symptoms had significant negative correlations with functional status and with overall quality of life. Self-care (symptom alleviation) strategies that helped were medicines, diet and nutrition, and lifestyle change. Checklist use (TRSC) facilitated patient-report of symptoms during cancer treatments; self-care strategies helped relieve symptoms.
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Trevino KM, Balboni M, Zollfrank A, Balboni T, Prigerson HG. Negative religious coping as a correlate of suicidal ideation in patients with advanced cancer. Psychooncology 2014; 23:936-45. [PMID: 24577802 DOI: 10.1002/pon.3505] [Citation(s) in RCA: 35] [Impact Index Per Article: 3.2] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 09/18/2013] [Revised: 01/08/2014] [Accepted: 01/27/2014] [Indexed: 12/12/2022]
Abstract
OBJECTIVE The purpose of this study is to examine the relationship between negative religious coping (NRC) and suicidal ideation in patients with advanced cancer, controlling for demographic and disease characteristics and risk and protective factors for suicidal ideation. METHODS Adult patients with advanced cancer (life expectancy ≤6 months) were recruited from seven medical centers in the northeastern and southwestern USA (n = 603). Trained raters verbally administered the examined measures to patients upon study entry. Multivariable logistic regression analyses regressed suicidal ideation on NRC controlling for significant demographic, disease, risk, and protective factors. RESULTS Negative religious coping was associated with an increased risk for suicidal ideation (OR, 2.65 [95% CI, 1.22, 5.74], p = 0.01) after controlling for demographic and disease characteristics, mental and physical health, self-efficacy, secular coping, social support, spiritual care received, global religiousness and spirituality, and positive religious coping. CONCLUSIONS Negative religious coping is a robust correlate of suicidal ideation. Assessment of NRC in patients with advanced cancer may identify patients experiencing spiritual distress and those at risk for suicidal ideation. Confirmation of these results in future studies would suggest the need for interventions targeting the reduction of NRC to reduce suicidal ideation among advanced cancer patients.
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Affiliation(s)
- K M Trevino
- Rowan University, 201 Mullica Hill Rd, Glassboro, NJ, USA
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Music therapy for patients who have undergone hematopoietic stem cell transplant. EVIDENCE-BASED COMPLEMENTARY AND ALTERNATIVE MEDICINE 2014; 2014:742941. [PMID: 24527052 PMCID: PMC3913188 DOI: 10.1155/2014/742941] [Citation(s) in RCA: 13] [Impact Index Per Article: 1.2] [Reference Citation Analysis] [Abstract] [Track Full Text] [Download PDF] [Figures] [Subscribe] [Scholar Register] [Received: 11/13/2013] [Accepted: 12/24/2013] [Indexed: 11/17/2022]
Abstract
Objectives. This study examines the short- and long-term QOL benefits of a music therapy
intervention for patients recovering from hematopoietic stem cell transplantation (HSCT). Methods. Ninety allogeneic HSCT patients, after transplant, were randomized to receive ISO-principle (i.e., mood matching) based music therapy (MT; n = 29), unstructured music (UM; n = 30), or usual care (UC; n = 31) for four weeks. The ISO principle posits that patients may shift their mood from one state to another by listening to music that is “equal to” the individual's initial mood state and subsequently listening to music selections that gradually shift in tempo and mood to match the patient's desired disposition. Participants in MT and UM groups developed two audio CDs to help them feel more relaxed and energized and were instructed to use the CDs to improve their mood as needed. Short-term effects on mood and long-term effects on QOL were examined. Results. MT and UM participants reported improved mood immediately after listening to CDs; the within-group effect was greater for UM participants compared to MT participants. Participant group was not associated with long-term QOL outcomes. Conclusions. Music listening improves mood acutely but was not associated with long-term benefits in this study.
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O'Callaghan CC, McDermott F, Michael N, Daveson BA, Hudson PL, Zalcberg JR. "A quiet still voice that just touches": music's relevance for adults living with life-threatening cancer diagnoses. Support Care Cancer 2013; 22:1037-47. [PMID: 24287507 DOI: 10.1007/s00520-013-2059-1] [Citation(s) in RCA: 20] [Impact Index Per Article: 1.7] [Reference Citation Analysis] [Abstract] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 08/15/2013] [Accepted: 11/12/2013] [Indexed: 11/26/2022]
Abstract
PURPOSE Music has historically aided health and loss-adaptation, however, cancer patients' experience of music for self-care is not well understood. This study examines adult cancer patients' views about music's role before and after diagnosis. METHODS Constructivist approach, with grounded theory informed design using convenience, snowball and theoretical sampling. Patients from Australian metropolitan cancer and hospice settings completed demographic questionnaires and participated in semi-structured interviews. Qualitative inter-rater reliability was applied. RESULTS Fifty-two patients reported comparable time spent experiencing music pre-post diagnosis. Music may remain incidental; however, many patients adapt music usage to ameliorate cancer's aversive effects. Patients often draw from their musical lives and explore unfamiliar music to: remain connected with pre-illness identities; strengthen capacity for enduring treatment, ongoing survival (even when knowing "you're going to die"), or facing death; reframe upended worlds; and live enriched lives. Patients can ascribe human or physical properties to music when describing its transformative effects. Familiar lyrics maybe reinterpreted, and patients' intensified emotional reactions to music can reflect their threatened mortality. Sometimes music becomes inaccessible, elusive, and/or intensifies distress and is avoided. Families', friends' and professionals' recognition of patients' altered musical lives and music-based suggestions can extend patients' use of music for self-care. CONCLUSION Health professionals can support patients by inquiring about their music behaviours and recognising that altered music usage may signify vulnerability. Although commonly recommended, hospital concerts and music broadcasts need sensitive delivery. Patients' preferred music should be available in diagnostic, treatment and palliative settings because it can promote endurance and life enrichment.
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Affiliation(s)
- Clare C O'Callaghan
- Caritas Christi Hospice, St. Vincent's Hospital, 104 Studley Park Road, Kew, Melbourne, Australia, 3101,
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McLaughlin B, Yoo W, D'Angelo J, Tsang S, Shaw B, Shah D, Baker T, Gustafson D. It is out of my hands: how deferring control to God can decrease quality of life for breast cancer patients. Psychooncology 2013; 22:2747-54. [PMID: 23913722 DOI: 10.1002/pon.3356] [Citation(s) in RCA: 14] [Impact Index Per Article: 1.2] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 02/14/2013] [Revised: 06/10/2013] [Accepted: 06/26/2013] [Indexed: 11/06/2022]
Abstract
OBJECTIVE This paper seeks to contribute to the understanding of how and why religion affects psychosocial health outcomes. We propose a theoretical model predicting that when women with breast cancer defer control to God they will experience fewer breast cancer related concerns. Deferring control to God, however, should also reduce the likelihood that they take a proactive coping approach, which will be exacerbated by lowered breast cancer concerns. We therefore predict that this passive coping style will ultimately result in lower levels of quality of life. METHODS Data were collected as part of a randomized clinical trial funded by the National Cancer Institute. A total of 192 women with breast cancer participated in a computer-mediated social support group. Deferring control to God statements were captured by using computer-aided content analysis of discussion posts. Psychosocial outcomes were measured using longitudinal survey data. Analysis was performed using structural equation modeling. RESULTS The results of our analysis largely confirm our mediation model for which we find significant model fit. As predicted, deferring control to God leads to lower levels of breast cancer concerns but also to more passive coping styles. Ultimately, deferring control to God can lead to lower levels of quality of life. CONCLUSIONS Our study demonstrates how and why religious coping can lead to both positive and negative psychosocial health outcomes. Health care practitioners should encourage patients who are relying on religion to keep their end of the bargain and maintain an active coping style.
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Affiliation(s)
- Bryan McLaughlin
- School of Journalism and Mass Communication, University of Wisconsin, Madison, Madison, WI, USA
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Perez-Cruz P, Nguyen L, Rhondali W, Hui D, Palmer JL, Sevy I, Richardson M, Bruera E. Attitudes and perceptions of patients, caregivers, and health care providers toward background music in patient care areas: an exploratory study. J Palliat Med 2013; 15:1130-6. [PMID: 22957677 DOI: 10.1089/jpm.2012.0152] [Citation(s) in RCA: 10] [Impact Index Per Article: 0.8] [Reference Citation Analysis] [Abstract] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 11/13/2022] Open
Abstract
BACKGROUND Background music can be used to distract from ordinary sounds and improve wellbeing in patient care areas. Little is known about individuals' attitudes and beliefs about music versus ordinary sound in this setting. OBJECTIVES To assess the preferences of patients, caregivers and healthcare providers regarding background music or ordinary sound in outpatient and inpatient care areas, and to explore their attitudes and perceptions towards music in general. METHODS All participants were exposed to background music in outpatient or inpatient clinical settings. 99 consecutive patients, 101 caregivers and 65 out of 70 eligible healthcare providers (93%) completed a survey about music attitudes and preferences. The primary outcome was a preference for background music over ordinary sound in patient care areas. RESULTS Preference for background music was high and similar across groups (70 patients (71%), 71 caregivers (71%) and 46 providers (71%), p=0.58). The three groups had very low disapproval for background music in patient care areas (10%, 9% and 12%, respectively; p=0.91). Black ethnicity independently predicted lower preference for background music (OR: 0.47, 95%CI: 0.23, 0.98). Patients, caregivers and providers reported recent use of music for themselves for the purpose of enjoyment (69%, 80% and 86% respectively p=0.02). Age, gender, religion and education level significantly predicted preferences for specific music styles. CONCLUSION Background music in patient care areas was preferred to ordinary sound by patients, caregivers and providers. Demographics of the population are strong determinants of music style preferences.
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Affiliation(s)
- Pedro Perez-Cruz
- Department of Palliative Care and Rehabilitation Medicine, The University of Texas M.D. Anderson Cancer Center, Houston, Texas 77030, USA
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Kavradim ST, Ozer ZC, Bozcuk H. Hope in people with cancer: a multivariate analysis from Turkey. J Adv Nurs 2012; 69:1183-96. [PMID: 22891939 DOI: 10.1111/j.1365-2648.2012.06110.x] [Citation(s) in RCA: 23] [Impact Index Per Article: 1.8] [Reference Citation Analysis] [Abstract] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Accepted: 06/30/2012] [Indexed: 11/29/2022]
Abstract
AIM The study was planned to determine the hope levels of people with cancer and the variables affecting hope. BACKGROUND Hope is essential for patient well-being and positively correlated with improved coping skill. DESIGN A descriptive and exploratory design. METHODS The study sample included 240 consecutive patients treated with chemotherapy and attending the Day Chemotherapy Unit of a University Hospital in Turkey. The study was conducted between December 2009-January 2010. Personal Information Form and Herth Hope Scale were used for data collection. The determinants and subscales of hope were evaluated with univariate and multivariate regression analyses. RESULTS These mean scores showed high levels of hope among the patients included in the study. It was found that net family income, knowledge level about the disease, feeling of improvement, perception of satisfactory family support by the patient, mouth ulcers, feeling anxious or worried and presence of fear were independently related with the total hope score. CONCLUSIONS The study results showed high levels of hope among the participating patients. It is concluded that physical, financial and psychological well-being and information and support needs are directly and independently related with hope in people with cancer. These findings support the need for clinicians to continue to practise and implement hope fostering/hindering interventions among their patients.
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Dempster M, McCorry NK, Brennan E, Donnelly M, Murray L, Johnston BT. Psychological distress among survivors of esophageal cancer: the role of illness cognitions and coping. Dis Esophagus 2012; 25:222-7. [PMID: 21819485 DOI: 10.1111/j.1442-2050.2011.01233.x] [Citation(s) in RCA: 46] [Impact Index Per Article: 3.5] [Reference Citation Analysis] [Abstract] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Indexed: 12/11/2022]
Abstract
Leventhal's common sense model has provided a useful framework for explaining psychological distress in several chronic illnesses. The model indicates that a person's perception of their illness and their coping strategies are the key determinants of their experience of psychological distress. The present research examines whether illness perceptions and coping strategies are related to levels of psychological distress among survivors of esophageal cancer. Everyone registered with the Oesophageal Patients' Association in the UK was mailed a questionnaire booklet, which included the Illness Perception Questionnaire-Revised, the Cancer Coping Questionnaire, and the Hospital Anxiety and Depression Scale. Complete responses were received from 484 people. Regression models indicated that the variables measured could explain 51% of the variance in anxiety and 42% of the variance in depression. Perceptions of esophageal cancer explained the majority of this variance. Positive focus coping strategies were also found to be important in explaining psychological distress. The results of this study are consistent with previous research demonstrating that illness perceptions are stronger correlates of adaptive outcomes than coping strategies. The findings suggest that cognition-based interventions could potentially be most effective in minimizing emotional distress among survivors of esophageal cancer.
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Affiliation(s)
- Martin Dempster
- School of Psychology, Queen's University Belfast, Northern Ireland, UK.
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McCorry NK, Dempster M, Quinn J, Hogg A, Newell J, Moore M, Kelly S, Kirk SJ. Illness perception clusters at diagnosis predict psychological distress among women with breast cancer at 6 months post diagnosis. Psychooncology 2012; 22:692-8. [PMID: 22389291 DOI: 10.1002/pon.3054] [Citation(s) in RCA: 72] [Impact Index Per Article: 5.5] [Reference Citation Analysis] [Abstract] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 08/19/2011] [Revised: 01/30/2012] [Accepted: 01/30/2012] [Indexed: 11/08/2022]
Abstract
OBJECTIVE This study aimed to examine the extent to which illness perceptions and coping strategies among women diagnosed with breast cancer explain psychological distress at diagnosis and at 6 months post diagnosis relative to demographic and illness-related variables. METHODS Women were recruited to the study shortly after diagnosis. A total of 90 women completed study materials (Illness Perception Questionnaire-Revised, the Cancer Coping Questionnaire and the Hospital Anxiety and Depression Scale) at time 1. The same questionnaires were sent approximately 6 months later to those who had consented at time 1, and completed questionnaires were returned by 72 women. RESULTS Cluster analysis was used to identify groups of respondents who reported a similar profile of illness perception scores. Regression analysis demonstrated that one of these clusters was more likely to experience psychological distress than the other both at diagnosis and at 6 months post diagnosis. Illness perception cluster membership and positive focus type coping were the most important and consistent predictors of lower psychological distress at diagnosis and at 6 months post diagnosis. CONCLUSIONS Illness perceptions remained relatively stable over the study period, and therefore we are unable to clarify whether changes in illness cognitions are associated with a corresponding change in psychological symptoms. Future research should evaluate the impact on psychological distress of interventions specifically designed to modify illness cognitions among women with breast cancer.
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Affiliation(s)
- Noleen K McCorry
- Marie Curie Hospice Belfast, Marie Curie Cancer Care, Belfast, Northern Ireland, UK
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Trevino KM, Archambault E, Schuster J, Richardson P, Moye J. Religious coping and psychological distress in military veteran cancer survivors. JOURNAL OF RELIGION AND HEALTH 2012; 51:87-98. [PMID: 21822744 PMCID: PMC4859334 DOI: 10.1007/s10943-011-9526-0] [Citation(s) in RCA: 15] [Impact Index Per Article: 1.2] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Grants] [Track Full Text] [Subscribe] [Scholar Register] [Indexed: 05/24/2023]
Abstract
Research on the relationship between religious coping and psychological well-being in cancer survivors is limited. Forty-eight veteran cancer survivors completed measures of psychological distress, posttraumatic growth, and positive and negative religious coping. Negative religious coping was associated with greater distress and growth. Positive religious coping was associated with greater growth. Gender, race, and religious affiliation were significant predictors of positive and negative religious coping. Veteran cancer survivors who utilize negative religious coping may benefit from referral to clergy or a mental health professional. Assessment of religious coping may be particularly important for female, non-White, and Christian cancer survivors.
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Affiliation(s)
- Kelly M Trevino
- Psychosocial Oncology and Palliative Care, Dana Farber Cancer Institute, Harvard Medical School, 450 Brookline Ave., Boston, MA 02215, USA.
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Trevino KM, Archambault E, Schuster JL, Hilgeman MM, Moye J. Religiosity and spirituality in military veteran cancer survivors: a qualitative perspective. J Psychosoc Oncol 2012; 29:619-35. [PMID: 22035535 DOI: 10.1080/07347332.2011.615380] [Citation(s) in RCA: 9] [Impact Index Per Article: 0.7] [Reference Citation Analysis] [Abstract] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 10/15/2022]
Abstract
Religiosity/spirituality (R/S) is often involved in coping with cancer. Qualitative research effectively captures the individuality of R/S constructs. Fourteen military veteran cancer survivors participated in focus groups. R/S questions included "How have your religious/spiritual beliefs affected how you cope with your cancer" and "How have your religious/spiritual beliefs changed as a result of your experience with cancer?" Five primary themes emerged: impact of cancer on R/S, meaning-making, prayer, religious/spiritual role of others, and facing death. Consistency and individuality characterized the role of R/S in cancer survivorship across themes. Implications for future research are discussed.
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Affiliation(s)
- Kelly M Trevino
- Psychosocial Oncology and Palliative Care, Dana Farber Cancer Institute, Boston, MA, USA.
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Townsend D, Accurso-Massana C, Lechman C, Duder S, Chasen M. Cancer nutrition rehabilitation program: the role of social work. ACTA ACUST UNITED AC 2011; 17:12-7. [PMID: 21151404 DOI: 10.3747/co.v17i6.575] [Citation(s) in RCA: 8] [Impact Index Per Article: 0.6] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 11/15/2022]
Abstract
The Cancer Nutrition Rehabilitation (cnr) program at the McGill University Health Centre is an interdisciplinary 8-week treatment program offering patients information, education, treatment, and support in areas such as diet, exercise, and rehabilitation, plus resources to address their psychosocial needs. The program social worker helps the patient and the patient's family to cope with the illness, to problem-solve, and to obtain needed resources. Here, we present a description of these patients-demographics, medical diagnoses, and psychosocial needs as assessed by the Person-in-Environment standardized instrument-derived from the social-work files of the 75 patients referred to social work in the period February 2007-December 2008. The reason most frequently reported for referral to social work was assistance with psychosocial problems. For 41.3% of the sample, these problems were assessed as high severity, and almost half the patients in the sample (47.8%) were assessed as having inadequate coping ability. Patient age was the most important demographic variable. Although seniors (63-94 years of age) were the least likely to have high-severity psychosocial problems, they were the most likely to have inadequate coping ability. That finding suggests that the cnr social worker, in addition to dealing with the instrumental, practical needs of cancer patients, is in a unique position to respond to their emotional difficulties in coping with their illness, and that health care professionals need to pay particular attention to the coping ability of elderly patients.
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Affiliation(s)
- D Townsend
- Social Service, Adult Sites, McGill University Health Centre, Montreal, QC
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Hamilton R, Miedema B, MacIntyre L, Easley J. Using a positive self-talk intervention to enhance coping skills in breast cancer survivors: lessons from a community-based group delivery model. Curr Oncol 2011; 18:e46-53. [PMID: 21505589 PMCID: PMC3070711 DOI: 10.3747/co.v18i2.706] [Citation(s) in RCA: 13] [Impact Index Per Article: 0.9] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 11/15/2022] Open
Abstract
PURPOSE Cancer survivorship is a distinct phase of the cancer continuum, and it can have myriad associated stresses and challenges. The purpose of the present study was to evaluate the effectiveness of a positive self-talk (pst) intervention in enhancing the coping skills and improving the psychological well-being of breast cancer survivors. METHODS Participants (n = 38) were recruited from 5 support groups in a small eastern Canadian province. Support groups were randomly assigned to either a control (n = 18) or an intervention (n = 20) condition. Intervention participants were pre-tested, received a 2-hour pst in-person group workshop and a 10-minute "booster" session by telephone, and completed post-test questionnaires 1 month later. RESULTS Intervention participants reviewed the workshop favourably. Nearly all participants used the intervention in everyday life, were able to accurately describe how pst works, and found that pst had a considerable impact on their ability to cope with cancer and related sequelae. However, the descriptive findings from the workshop evaluation did not translate into significant differences between the intervention and control groups on the psychometric measures. CONCLUSIONS The pst intervention, delivered in a community group model, was positively received and effective in teaching participants about pst and how pst can be used to enhance coping skills for breast cancer patients. However, the intervention did not promote significantly greater levels of change in anxiety, depression, mood disturbance, or coping ability for intervention participants. The unique challenges of community-level psychological intervention are explored.
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Affiliation(s)
- R. Hamilton
- Dalhousie University Family Medicine Teaching Unit, Fredericton, NB
| | - B. Miedema
- Dalhousie University Family Medicine Teaching Unit, Fredericton, NB
| | - L. MacIntyre
- Dalhousie University Family Medicine Teaching Unit, Fredericton, NB
| | - J. Easley
- Dalhousie University Family Medicine Teaching Unit, Fredericton, NB
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O'Callaghan C, Barry P, Thompson K. Music's relevance for adolescents and young adults with cancer: a constructivist research approach. Support Care Cancer 2011; 20:687-97. [PMID: 21311914 DOI: 10.1007/s00520-011-1104-1] [Citation(s) in RCA: 21] [Impact Index Per Article: 1.5] [Reference Citation Analysis] [Abstract] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 05/17/2010] [Accepted: 01/24/2011] [Indexed: 11/29/2022]
Abstract
PURPOSE Music is one of the most widely used activities amongst young people, significant in personal and group identity, motivation, physical release, and emotional support. Adolescents and young adults with cancer (AYA) require specialized care because of intensified challenges related to developmental vulnerability, treatment toxicity effects, and slower improvements in survival rates compared to other age groups. To advance effective supportive care for AYA, understanding their thoughts about music is necessary. This study examines AYAs' perspectives about music's role in their lives. METHODS A constructivist research approach with grounded theory design was applied. Twelve people, 15 to 25 years old, known to onTrac@PeterMac Victorian Adolescent & Young Adult Cancer Service, participated. Respondents completed a brief music demographic questionnaire and participated in a semi-structured interview. Qualitative inter-rater reliability was integrated. RESULTS Participants mostly reported music's calming, supportive, and relaxing effects, which alleviated hardship associated with their cancer diagnoses. Themes encompassed: music backgrounds, changed "musicking", endurance and adjustment, time with music therapists, and wisdom. Music provided supportive messages, enabled personal and shared understandings about cancer's effects, and elicited helpful physical, emotional, and imagery states. Music therapy could also promote normalized and supportive connections with others. A musician, however, struggled to get music "back" post-treatment. Supportive music-based strategies were recommended for other AYA and their health care providers. CONCLUSIONS Music can signify and creatively enable AYAs' hope, endurance, identity development, and adjustment through cancer treatment and post-treatment phases. Health professionals are encouraged to support AYAs' music-based self-care and "normalized" activities.
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Affiliation(s)
- Clare O'Callaghan
- Caritas Christi Hospice, St. Vincent's Hospital, Melbourne, Australia.
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Kristiansen M, Tjørnhøj-Thomsen T, Krasnik A. "Sometimes you just have to walk alone"--meanings of emotional support among Danish-born and migrant cancer patients. J Psychosoc Oncol 2011; 28:699-717. [PMID: 21058164 DOI: 10.1080/07347332.2010.516808] [Citation(s) in RCA: 4] [Impact Index Per Article: 0.3] [Reference Citation Analysis] [Abstract] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 10/18/2022]
Abstract
The study explores differences and similarities in needs for and experiences with emotional support among Danish-born and migrant cancer patients. Qualitative narrative interviews with 18 adult cancer patients were conducted. Analysis was inspired by phenomenological methods. Migrant patients experienced more dispersed social networks compared to Danish-born patients. However, common difficulties in asking for and receiving emotional support were related to cancer being perceived as a fatal disease among the social network, and this lead to fear among patients that articulating needs for support would result in loss of normality and nonpatient identity.
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Affiliation(s)
- Maria Kristiansen
- Department of Health Services Research, Institute of Public Health, Faculty of Health Sciences, University of Copenhagen, Copenhagen, Denmark.
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Sohl SJ, Stossel L, Schnur JB, Tatrow K, Gherman A, Montgomery GH. Intentions to use hypnosis to control the side effects of cancer and its treatment. AMERICAN JOURNAL OF CLINICAL HYPNOSIS 2010; 53:93-100. [PMID: 21049742 DOI: 10.1080/00029157.2010.10404331] [Citation(s) in RCA: 16] [Impact Index Per Article: 1.1] [Reference Citation Analysis] [Abstract] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 10/17/2022]
Abstract
Evidence suggests that hypnosis is an effective intervention for reducing distress, pain and other side effects associated with cancer and its treatment. However, hypnosis has failed to be adopted into standard clinical practice. This study (n = 115) investigated overall intentions to use hypnosis to control side effects of cancer and its treatment, as well as demographic predictors of such intentions among healthy volunteers. Results suggest that the vast majority of participants (89%) would be willing to use hypnosis to control side effects associated with cancer treatment. Mean intention levels did not differ by gender, ethnicity, education or age. These results indicate that in the general public, there is a willingness to consider the use of hypnosis, and that willingness is not determined by demographic factors. This broad acceptance of hypnosis argues for more widespread dissemination.
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Kristiansen M, Tjørnhøj-Thomsen T, Krasnik A. The benefit of meeting a stranger: Experiences with emotional support provided by nurses among Danish-born and migrant cancer patients. Eur J Oncol Nurs 2010; 14:244-52. [DOI: 10.1016/j.ejon.2010.01.028] [Citation(s) in RCA: 8] [Impact Index Per Article: 0.5] [Reference Citation Analysis] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 05/22/2009] [Revised: 01/16/2010] [Accepted: 01/29/2010] [Indexed: 11/25/2022]
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44
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Koenig HG. Spirituality and mental health. INTERNATIONAL JOURNAL OF APPLIED PSYCHOANALYTIC STUDIES 2010. [DOI: 10.1002/aps.239] [Citation(s) in RCA: 42] [Impact Index Per Article: 2.8] [Reference Citation Analysis] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 11/10/2022]
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Utne I, Miaskowski C, Bjordal K, Paul SM, Jakobsen G, Rustøen T. Differences in the use of pain coping strategies between oncology inpatients with mild vs. moderate to severe pain. J Pain Symptom Manage 2009; 38:717-26. [PMID: 19775862 DOI: 10.1016/j.jpainsymman.2009.03.005] [Citation(s) in RCA: 19] [Impact Index Per Article: 1.2] [Reference Citation Analysis] [Abstract] [MESH Headings] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 04/15/2008] [Revised: 02/25/2009] [Accepted: 04/01/2009] [Indexed: 11/28/2022]
Abstract
The purposes of this study were to determine a clinically significant cutpoint for worst pain and to evaluate for differences in the use of pain coping strategies between oncology inpatients with mild (i.e., worst pain intensity scores of <or=4) compared with moderate to severe (i.e., worst pain intensity scores of >4) pain based on results of the cutpoint analysis. Oncology inpatients in pain (n=224) completed the Coping Strategies Questionnaire (CSQ), the Brief Pain Inventory, and the European Organization for Research and Treatment of Cancer Quality of Life Questionnaire (EORTC QLQ-C30). Fifty-six percent had moderate to severe pain. Patients in the moderate to severe pain group had significantly poorer Karnofsky Performance Status scores (P=0.04) and significantly lower ratings of overall health (P<0.0001). No differences were found between the two pain groups on any of the subscales of the CSQ, except catastrophizing (P<0.0001). Compared with the mild pain group, patients in the moderate to severe group scored significantly higher on this subscale. In addition, patients in the moderate to severe group used more passive coping strategies (P=0.02). Except for catastrophizing, the number and types of pain coping strategies used by this sample of hospitalized patients do not appear to be influenced by their pain intensity scores. Finally, when the CSQ scores of these hospitalized oncology patients were compared with those found in previous studies of oncology outpatients and patients with chronic noncancer pain, the scores were similar.
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Affiliation(s)
- Inger Utne
- Faculty of Nursing, Oslo University College, Oslo, Norway.
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46
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van Beilen M, Griffioen BT, Leenders KL. Coping strategies and IQ in psychogenic movement disorders and paralysis. Mov Disord 2009; 24:922-5. [PMID: 19260095 DOI: 10.1002/mds.22428] [Citation(s) in RCA: 10] [Impact Index Per Article: 0.6] [Reference Citation Analysis] [Abstract] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 11/10/2022] Open
Abstract
Inadequate coping strategies may cause some patients to develop psychogenic symptoms in periods of stress. This may be more prominent in patients with lower intelligence levels. Twenty-six patients with psychogenic neurological disorders (PND) were tested for coping abilities and intelligence and compared with 18 healthy controls and 26 patients with various nonpsychogenic disorders. Patients with PND have slightly lower IQ levels and active coping skills compared with healthy controls but not to nonpsychogenic patients. Low IQ was not associated with low active coping skills in either of the groups. Low active coping is not the result of low IQ and is not specific for psychogenic symptoms. At least part of the lower coping skills reported in patients with psychogenic symptoms may be the result of having an illness in general.
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Affiliation(s)
- M van Beilen
- Department of Neurology, University Medical Center Groningen, University of Groningen, The Netherlands.
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47
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Hebert R, Zdaniuk B, Schulz R, Scheier M. Positive and negative religious coping and well-being in women with breast cancer. J Palliat Med 2009; 12:537-45. [PMID: 19508140 PMCID: PMC2789454 DOI: 10.1089/jpm.2008.0250] [Citation(s) in RCA: 132] [Impact Index Per Article: 8.3] [Reference Citation Analysis] [Abstract] [MESH Headings] [Grants] [Track Full Text] [Download PDF] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 01/12/2023] Open
Abstract
BACKGROUND Although religions is important to many people with cancer, few studies have explored the relationship between religious coping and well-being in a prospective manner, using validated measures, while controlling for important covariates. METHODS One hundred ninety-eight women with stage I or II and 86 women with stage IV stage breast cancer were recruited. Standardized assessment instruments and structured questions were used to collect data at study entry and 8 to 12 months later. Religious coping was measured with validated measures of positive and negative religious coping. Linear regression models were used to explore the relationships between positive and negative religious coping and overall physical and mental well-being, depression, and life satisfaction. RESULTS The percentage of women who used positive religious coping (i.e., partnering with God or looking to God for strength, support, or guidance) "a moderate amount" or "a lot" was 76%. Negative religious coping (i.e., feeling abandoned by or anger at God) was much less prevalent; 15% of women reported feeling abandoned by or angry at God at least "a little." Positive religious coping was not associated with any measures of well-being. Negative religious coping predicted worse overall mental health, depressive symptoms, and lower life satisfaction after controlling for sociodemographics and other covariates. In addition, changes in negative religious coping from study entry to follow-up predicted changes in these well-being measures over the same time period. Cancer stage did not moderate the relationships between religious coping and well-being. CONCLUSIONS Negative religious coping methods predict worse mental heath and life satisfaction in women with breast cancer.
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Affiliation(s)
- Randy Hebert
- Forbes Hospice, Pittsburgh, Pennsylvania 15213, USA.
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Koenig HG. Research on religion, spirituality, and mental health: a review. CANADIAN JOURNAL OF PSYCHIATRY. REVUE CANADIENNE DE PSYCHIATRIE 2009; 54:283-91. [PMID: 19497160 DOI: 10.1177/070674370905400502] [Citation(s) in RCA: 547] [Impact Index Per Article: 34.2] [Reference Citation Analysis] [Abstract] [MESH Headings] [Track Full Text] [Subscribe] [Scholar Register] [Indexed: 01/12/2023]
Abstract
Religious and spiritual factors are increasingly being examined in psychiatric research. Religious beliefs and practices have long been linked to hysteria, neurosis, and psychotic delusions. However, recent studies have identified another side of religion that may serve as a psychological and social resource for coping with stress. After defining the terms religion and spirituality, this paper reviews research on the relation between religion and (or) spirituality, and mental health, focusing on depression, suicide, anxiety, psychosis, and substance abuse. The results of an earlier systematic review are discussed, and more recent studies in the United States, Canada, Europe, and other countries are described. While religious beliefs and practices can represent powerful sources of comfort, hope, and meaning, they are often intricately entangled with neurotic and psychotic disorders, sometimes making it difficult to determine whether they are a resource or a liability.
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Affiliation(s)
- Harold G Koenig
- Duke University Medical Center, Durham, North Carolina 27710, USA.
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Seifert G, Driever PH, Pretzer K, Edelhäuser F, Bach S, Laue HBV, Längler A, Musial-Bright L, Henze G, Cysarz D. Effects of complementary eurythmy therapy on heart rate variability. Complement Ther Med 2008; 17:161-7. [PMID: 19398070 DOI: 10.1016/j.ctim.2008.09.005] [Citation(s) in RCA: 20] [Impact Index Per Article: 1.2] [Reference Citation Analysis] [Abstract] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 01/14/2008] [Revised: 09/11/2008] [Accepted: 09/12/2008] [Indexed: 11/15/2022] Open
Abstract
BACKGROUND The importance of mind-body oriented therapies in oncology has increased in recent years. Eurythmy therapy (EYT, Greek: eurythmy=harmonious rhythm) is a mind-body oriented therapy used in Anthroposophic Medicine. EYT can lead to long-term alleviation of chronic disease symptoms and improve patient quality of life. Yet, little is known about underlying physiological mechanisms. OBJECTIVE This study aims to compare the effects of EYT and conventional ergometer training (CET) on heart rate variability (HRV). DESIGN In a cross-over design, 20 healthy subjects performed two different EYT exercises and two sessions of CET. ECGs were recorded throughout these procedures. HRV was quantified by the extent of very low (VLF), low (LF) and high frequency (HF) oscillations of heart rate. RESULTS VLF and LF oscillations increased during one EYT exercises when compared to rest after EYT ('B exercise', VLF: 7.65 vs. 6.57 log ms(2); LF: 8.06 vs. 6.15 log ms(2)) whereas during the other EYT exercise only LF increased ('L exercise', LF: 7.19 vs. 6.25 log ms(2)). HF was not affected. During CET VLF, LF and HF decreased compared to rest (VLF: 5.4 log ms(2), LF: 4.5 log ms(2), HF: 3.2 log ms(2)). During rest after both EYT exercises LF/HF decreased when compared to rest after CET (0.4 and 0.5 vs. 1.4). CONCLUSION At comparable workloads, EYT stimulated HRV whereas CET attenuated HRV. The decrease of LF/HF during rest after EYT indicates an improved relaxation. These results suggest that patients may benefit from EYT in terms of HRV improvement.
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Affiliation(s)
- Georg Seifert
- Department of Pediatric Oncology and Hematology, Charité-Universitätsmedizin Berlin, Germany.
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Quin J, Stams V, Phelps B, Boley T, Hazelrigg S. Interest in internet lung cancer support among rural cardiothoracic patients. J Surg Res 2008; 160:35-9. [PMID: 19394639 DOI: 10.1016/j.jss.2008.10.004] [Citation(s) in RCA: 5] [Impact Index Per Article: 0.3] [Reference Citation Analysis] [Abstract] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 07/31/2008] [Revised: 09/01/2008] [Accepted: 10/03/2008] [Indexed: 10/21/2022]
Abstract
BACKGROUND The Internet may provide an alternative option for rural lung cancer patients who lack access to on-site cancer support; however, Internet access and use among rural patients is unknown. METHODS An anonymous waiting-room survey was administered to all outpatient cardiothoracic surgery patients over 3 mo. Survey questions included age, gender, and diagnosis, possession of a home computer and Internet service, estimated Internet use, and use of the Internet for health information. Patients with known or suspected lung cancer were asked to indicate their interest in on-site and Internet cancer support. RESULTS There were 597 returned surveys (response rate 96%). The mean age was 64.6 y (SE 0.55), and 58% were men. Diagnoses included known or possible lung cancer (15.4%), lung disease (9.5%), heart disease (30.4%), other diagnoses (13.9%), and undetermined (30.6%). There were 343 patients (57.4%) with a home computer and 299 (50.1%) with home Internet service. Average Internet use was 8.5 h per wk (n = 298), and 225 patients used the Internet for health information. Of the 92 patients with lung cancer, 10 indicated interest in on-site support services while 37 expressed interest in Internet-based support. CONCLUSIONS Based on survey results, a slight majority of rural patients have a home computer and Internet access. Internet use for health information appears relatively common. Overall interest for support services among lung cancer patients appears modest with a greater interest in Internet-based services compared with on-site support.
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Affiliation(s)
- Jacquelyn Quin
- Department of Surgery, Southern Illinois University, Springfield, Illinois 62794-9638, USA.
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