Determinants of disease-specific knowledge among children with inflammatory bowel disease and their parents: A multicentre study

Table 1 Demographics of inflammatory bowel disease patients participating in inflammatory bowel disease-knowledge inventory device study

Variable	Categories of variable	Patients, n (%)
Patient’s gender	Female	140 (52.0)
	Male	129 (48.0)
Parent’s gender	Female	232 (80.0)
	Male	58 (20.0)
Place of residence	Rural	172 (57.9)
	Urban	125 (41.1)
Parent’s education	Lower than secondary	48 (16.2)
	Secondary	123 (41.6)
	Higher than secondary	125 (42.2)
Disease type	CD1	196 (65.8)
	UC2	102 (34.2)
IBD family history		50 (16.8)
J-elita membership		64 (21.8)
Treatment modes
Aminosalicylates	All patients	248 (83.2)
	CD	160 (81.6)
	UC	88 (86.3)
Immunomodulators	All patients	205 (68.8)
	CD	143 (73.0)
	UC	62 (60.8)
Biologic therapy	All patients	99 (33.2)
	CD	81 (41.3)
	UC	18 (17.6)
Exclusive enteral nutrition	All patients	98 (32.9)
	CD	85 (43.4)
	UC	13 (12.7)
Dietary counselling	All patients	90 (30.2)
	CD	67 (34.2)
	UC	23 (22.5)
Psychological support	All patients	53 (17.8)
	CD	34 (17.3)
	UC	19 (18.6)
Surgical treatment	All patients	30 (10.1)
	CD	27 (13.8)
	UC	3 (2.9)
Patient’s self-assessment of knowledge	Good	120 (45.1)
	Average	125 (47.0)
	Low	21 (7.9)
Parent’s self-assessment of knowledge	Good	152 (51.7)
	Average	122 (41.5)
	Low	20 (6.8)
Sources of parent’s information about disease
Physician		241 (80.9)
Nurse		66 (22.1)
Internet		197 (66.1)
Journals		82 (27.5)
Books		77 (25.8)

¹One hundred and seventy-four questionnaires filled both by a child and a parent and 22 only by parents.

²Nity-five questionnaires filled both by a child and a parent and 7 filled only by parents. CD: Crohn’s disease; UC: Ulcerative colitis.