Psychological needs of parents of children with complicated congenital heart disease after admitting to pediatric intensive care unit: A questionnaire study

Table 2 Scores of items in the M-CCFNI scale

Dimension	Item content	Score (mean ± SD)
Medical staff support	1 Hope that before I enter the ICU for the first time, the medical staff can introduce me to the ICU	3.62 ± 0.58
	4 Hope to be guided by medical staff when visiting the ICU	3.63 ± 0.52
	6 Hope that medical staff will take the initiative to inform parents of the child’s condition and current situation	3.76 ± 0.46
	12 When the condition changes, someone can call the parents in time	3.82 ± 0.39
	15 Hope to know other experts who can solve children's problems	3.53 ± 0.66
	23 Hope to provide spiritual and psychological support	3.61 ± 0.58
	24 Hope that medical staff treat patients as relatives and sincerely care and take care of patients	3.78 ± 0.44
	28 I hope to talk to the ICU medical staff about my bad emotions, such as guilt, anger, etc.	2.97 ± 1.02
	29 Hope that medical staff will help like friends	3.54 ± 0.67
	30 Hope that medical staff can patiently explain, comfort and psychologically counsel	3.59 ± 0.63
	36 Sometimes family members are emotionally upset for the patient, and I hope the medical staff can understand	3.53 ± 0.63
Parents' own comfort	8 Hope that family members have comfortable rest facilities in the waiting room	3.12 ± 0.89
	13 Hope that there is a special waiting room for parents outside the ICU	3.00 ± 1.05
	19 Hope that there will be a special waiting room for family members outside the ICU	3.48 ± 0.71
	26 Hope that the hospital has humanized management and handles the relationship between doctors and patients’ family members	3.67 ± 0.51
Getting information	3 Hope to communicate with the doctor every day	3.69 ± 0.52
	7 Can understand the general information of the patient's doctor in charge and responsible nurse, such as job title, experience, level, etc.	3.52 ± 0.67
	9 I hope to communicate with the same nurse every day to understand the patient’s condition	3.53 ± 0.66
	14 Needs for understanding disease-related knowledge	3.63 ± 0.54
	16 Know what kind of information needs to be asked of staff	3.56 ± 0.63
	17 When you cannot go to the hospital to visit, you can call the responsible nurse or doctor to ask about the child’s condition	3.59 ± 0.62
	22 Know every treatment the child is currently receiving	3.78 ± 0.45
	25 Medical staff do not avoid the condition of the disease, and can talk to me about the possibility that the child's treatment effect is not significant	3.75 ± 0.46
	27 Be informed when planning to change the treatment plan	3.76 ± 0.49
	34 Know the purpose of a certain treatment for the patient	3.75 ± 0.48
	35 I hope to receive dietary guidance and activity guidance for children with various diseases	3.72 ± 0.49
The need to be close to the child	18 When parents have special circumstances, they hope to adjust the visiting time flexibly	3.57 ± 0.60
	32 Hope to be able to accommodate and increase visitation opportunities in special circumstances	3.65 ± 0.58
	33 Get information about the patient's condition every day	3.76 ± 0.47
	37 I hope the doctor can make an appointment to explain the child's condition	3.60 ± 0.62
Condition assurance	2 Hope that the medical staff can explain the condition easily and understandably	3.69 ± 0.52
	5 The medical staff can answer my questions truthfully	3.75 ± 0.45
	10 Feel the care of medical staff for patients	3.69 ± 0.49
	11 Let me understand the prognosis of the child	3.81 ± 0.40
	20 Hope that medical staff will do their best and be responsible	3.82 ± 0.42
	21 Can feel the condition is expected to improve	3.80 ± 0.41
	31 Can know the specific circumstances of the change	3.75 ± 0.47

ICU: Intensive care unit.